SIGHT SOUND & STRENGTH Events
The Usher Syndrome Society hosts educational events to teach the public about Usher syndrome and holds experiential fundraisers to raise money for research to ultimately find a cure. Our events are held in various settings that can hold as few as twenty five people up to several hundred. The venues range from a simple classroom or auditorium to a fitness studio, large climbing facility, or even a museum or library. Spreading awareness and raising funds are the only way to end this rare disease.