MANI IYER • POET • HUSBAND • FATHER • SOFTWARE ENGINEER • USH TRUST DEVELOPER • ESL TUTOR • MORE
Mani has a message for those who have Usher Syndrome. “Do not despair. There are a lot of resources, a lot of technology that can help us, and they keep growing and improving all the time. It is not going to be smooth or easy, but patience and perseverance will take us far. More than anything else, what gets in our way is the emotional piece, the baggage that comes with Usher Syndrome, and the sooner we learn to cope with it, the better our journey.
To the world I would like to say, losing two of our senses does not make us less human or less ‘normal’ (a word I hate). Just realize it is difficult to walk in our shoes. Support us in whatever way you can. Even a few kind words go a long way. Invite us into your fold and you will be surprised to learn how funny we can be!”
Mani Iyer was diagnosed with Usher Syndrome Type 2A at age 28.
Thank you Mani for sharing your story, he is an inspiration to us all !