Portraits

Sophia and Socrates

Thank you for visiting this page.  This is where we feature portraits and stories of all the remarkable people, families and researchers who are dedicated to bringing awareness and finding a cure for Usher syndrome.  Please return often to learn more!

Meet Sophia and Socrates

Our Usher Syndrome Society love story in honor of Valentines Day !

Going Blind While Falling in Love

By the time I was 26, in 2010, I had deemed myself as a perpetual non-dater with little to no motivation of ever meeting my soulmate.

Growing up I wanted to be a nun because it would be the easiest way of navigating the dating pool. Then I learned about religion and knew that becoming Mother Superior wasn’t the best career choice simply to avoid boys.

And then I met him, him the guy that I learned was my true love. Believe me when I say this, just writing that sentence makes me want to throw up the sugary ”love-is-great” statement. I’ve never been someone who thought there was a perfect person for everyone and I still don’t. I don’t believe that there’s  only one soulmate that each of us must find in the endless sea of humans. I do, however, believe that soulmates can evolve from absolutely nothing. continue reading