SIGHT SOUND & STRENGTH Events
The Usher Syndrome Society hosts educational events to teach the public about Usher syndrome and holds experiential fundraisers to raise money for research to ultimately find a cure. Our events are held in various settings that can hold as few as twenty five people up to several hundred. The venues range from a simple classroom or auditorium to a fitness studio, large climbing facility, or even a museum or library. We emphasize the importance of using our inner strength to help overcome any challenge we face.
Spreading awareness and raising funds are the only way to end this rare disease.