Events

 

USH2022: SHINE A LIGHT ON USHER SYNDROME 

 

PORTRAIT SIGNUPS & STORY SUBMISSIONS

Add your portrait and voice to the Shine a Light on Usher Syndrome Exhibit!

The Usher Syndrome Society takes portraits of people living with Usher syndrome to give a face and voice to this rare disease. The portraits and stories of each person are displayed in a traveling global exhibit called Shine A Light on Usher Syndrome. With the hope of finding treatments and a cure, this exhibit raises public awareness of Usher syndrome through photojournalism and portrays the many experiences of living with this disorder.

If you would like to be included in the Shine a Light on Usher Syndrome Exhibit, we will be taking portraits at the Usher Syndrome Coalition's USH Connections Conference on July 8-9th in Austin, TX. 

To sign up, please use the link below to pick a time slot. Once a time is chosen, you will automatically land on a details page to enter your name and your story. Please note: For children add their names under added guests and fill in their story under the prompts. Once the questions are answered click Schedule Event and your time slot will be reserved to have your portrait taken at the conference (Walk-ins may be possible starting at registration, however, we cannot guarantee availability).

For any questions please contact us at info@ushsociety.org