USH2019 PORTRAIT SIGN UP & STORY SUBMISSIONS
11TH ANNUAL USH CONNECTIONS CONFERENCE PHILADELPHIA
The Usher Syndrome Society is taking portraits of those living with Usher syndrome to give a face and voice to this rare disease. The portraits are displayed in a traveling global exhibit called Shine A Light on Usher Syndrome. With the hope of finding a cure, this exhibit raises public awareness of Usher syndrome through photojournalism and storytelling.
If you would like your portrait taken at the Usher Syndrome Coalition's USH Connections Conference on July 13, 2019 in Philadelphia, please submit your story by clicking on link below. You will also be given an opportunity to choose a time slot in advance of the conference to hold your spot. Walk-ins will be possible starting at registration, however, we cannot guarantee availability.