News • December 2, 2025
USH X Urban Wild Annual Boston Fundraiser raises over $200,000 for Usher syndrome research
The Annual Sight, Sound, & Strength Boston Fundraiser was held at Urban Wild on Tuesday, December 2nd in honor of Giving Tuesday.
Urban Wild is a restaurant, beer garden, live music venue, bowling alley, and outdoor game space located in Charlestown, MA.
With over 270 attendees and a special performance from singer/songwriter Mark Erelli, this year’s event was one for the books! Together we raised over $200,000 all of which goes directly towards Usher syndrome research.
Related News
Shine a Light on Usher Syndrome: 2026 USH Connections Conference
News • July 18, 2025Expanding the Shine a Light on Usher Syndrome Exhibit at the 2026 Connections ConferenceAt the 2026 USH Connections Conference in Minnesota, the Usher Syndrome Society captured the portraits and stories of over 40 individuals living with Usher...
The Usher Syndrome Society debuts a decade of storytelling during the See Us, Hear Us Immersive Exhibition at ARTECHOUSE NYC
News • October 23, 2025See Us, Hear Us Immersive Exhibition at ARTECHOUSE NYCOn Thursday, October 23rd, 2025 The Usher Syndrome Society hosted See Us, Hear Us at ARTECHOUSE NYC, sharing over a decade of photography, films, and stories. From debuting our documentary...
Published Research Study: AAV-mediated exon skipping therapy for Usher syndrome, type 2A
News • November 29, 2025Research Study: AAV-mediated exon skipping therapy for Usher syndrome, type 2AABSTRACT Usher syndrome can cause loss of vision, hearing and balance. There are four clinical subtypes, USH1 through 4, which are associated with mutations in genes...