News • December 2, 2025
USH X Urban Wild Annual Boston Fundraiser raises over $200,000 for Usher syndrome research
The Annual Sight, Sound, & Strength Boston Fundraiser was held at Urban Wild on Tuesday, December 2nd in honor of Giving Tuesday.
Urban Wild is a restaurant, beer garden, live music venue, bowling alley, and outdoor game space located in Charlestown, MA.
With over 270 attendees and a special performance from singer/songwriter Mark Erelli, this year’s event was one for the books! Together we raised over $200,000 all of which goes directly towards Usher syndrome research.
Related News
Rebecca Alexander talks about the Every Second Counts Campaign on The Today Show
News • May 16, 2024Rebecca Alexander Talks about the Every Second Counts Campaign on The Today Show and NBC News NowOn May 16th, 2024 following The Usher Syndrome Society's Times Square takeover that happened on May 1st, Rebecca Alexander and the Usher Syndrome...
Every Second Counts Times Square Takeover
News • May 1, 2024Every Second Counts Times Square Takeover On May 1st, 2024, the Usher Syndrome Society, in partnership with Initiative Global Media Agency, launched the groundbreaking “Every Second Counts” Campaign in Times Square, New York City. This campaign is a...
Hexafluoro slows retinal degeneration and improves visual function in zebrafish models of USH 1F
News • December 30, 2023Hexafluoro slows retinal degeneration and improves visual function in zebrafish models of Usher syndrome 1FFor the past few years, the Usher Syndrome Society has been helping fund research at the University of Oregon as part of our...