What Is It Like Going Blind And Deaf?

Steven McCoy is sitting in a chair with his legs crossed wearing a 3 piece blue suit
Rebecca Alexander is sitting in a chair wearing a black dress with her legs crossed

Please join us for an educational and awareness evening to learn about the rare disease Usher syndrome. CART will be available at the event. For other accessible requests see below.


a graphic of a timeline-5-6 pm drinks and appetizers, 6-6:15 private film premier, 6:15-7:15 discussion with Q&A, 7:15-7:45 Meet and Greet, 8:00 End of event.

Please Note: If you need an SSP ask your MCB case manager to fill out the referral form and send that to Jonathan Lejeune at jlejeune@deafinconline.org. DBCAN will process the request to provide SSP or CN services. Needs to be coordinated two weeks in advance of the event.

This is USH an evening of conversation

Click on names for more information:

Steven McCoy, the first recognized black deafblind journalist in the US, and Rebecca Alexander, an award-winning author, and psychotherapist who is almost completely blind and deaf will take the stage with moderator and esteemed media personality, Danita Chantel to talk about the unique experience of living with Usher syndrome, a rare genetic disease that causes progressive loss of both vision and hearing. Rebecca and Steven will address a range of topics including how to cultivate a deeply meaningful life in the face of adversity, using vulnerability as a tool for empowerment, finding comfort with discomfort, grief and loss, intersectionality, self-advocacy, and beyond.

This event is free and open to the public. Registration is required.


Joseph B. Martin Conference Center at Harvard Medical School

Monday, December 12, 2022
5:00 PM – 8:00 PM
77 Avenue Louis Pasteur
Boston, MA 02115 MAP


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