What Is It Like Going Blind And Deaf?

Steven McCoy is sitting in a chair with his legs crossed wearing a 3 piece blue suit
Rebecca Alexander is sitting in a chair wearing a black dress with her legs crossed

Please join us for an educational and awareness evening to learn about the disease you may never have heard of. CART will be available at the event. For other accessible requests see below.

 

a graphic of a timeline-5-6 pm drinks and appetizers, 6-6:15 private film premier, 6:15-7:15 discussion with Q&A, 7:15-7:45 Meet and Greet, 8:00 End of event.

Please Note: If you need an SSP ask your MCB case manager to fill out the referral form and send that to Jonathan Lejeune at jlejeune@deafinconline.org. DBCAN will process the request to provide SSP or CN services. Needs to be coordinated two weeks in advance of the event.

This is USH an evening of conversation

Steven McCoy and Rebecca Alexander, with moderator Danita Chantel, will, take the stage to share the lived experience of Usher syndrome (USH). Usher syndrome is the most common genetic cause of combined deafness and blindness. Rebecca and Steven will cover topics like grief and loss, living in fear, self-advocacy, asking for help, and more. 

This event is free and open to the public. Registration is required.

Details:

Monday, December 12, 2022
5:00 PM – 8:00 PM
77 Avenue Louis Pasteur
Boston, MA 02115 MAP