Past Events • November 19, 2019

Sight, Sound, Strength: Harpoon Brewery

On November 19, 2019 the Usher Syndrome Society hosted our annual experiential fundraiser event at Harpoon Brewery in Boston, MA to bring awareness and funding to support Usher syndrome.

 

The event included an array of experiential stations that asked participants to connect to their senses. These stations ranged from a blind beer tasting and blind taco bar to a silent disco featuring music with simulated hearing loss.

 

The event also featured an educational component and Rebecca Alexander took the floor to share with attendees her experience of losing her vision and hearing due to Usher syndrome and how she has found strength in her journey.

A woman sits at a table listening to headphone and smiling. Behind her is a portrait from the Shine a light on Usher Syndrome exhibit
The sponsor logos for the Sight Sound Strength Harpoon Brewery events

Click here to learn more about our Sight, Sound, & Strength Events

More Events

USH X SPIN 2023

USH X SPIN 2023

Past Events • November 28, 2023USH X SPIN 2023Our USH X Spin Boston Ping Pong fundraiser was an enormous success. The incredible support we received from everyone was overwhelming. Thanks to you, we were able to raise over $140,000 which will go directly to our...

Orangetheory Fitness X USH

Orangetheory Fitness X USH

Past Events • June 3, 2023Orangetheory Fitness X USHOn June 3, 2023, Orangetheory Fitness studios around the country came together to educate the public and raise research funds for the rare disease Usher syndrome, the leading genetic cause of combined deafness and...

This is USH: An Evening of Conversation

This is USH: An Evening of Conversation

Past Events • December 12, 2022This is USH: An Evening of ConversationOn December 12th, 2022, The Usher Syndrome Society hosted the first This is USH event, where we heard from Steven McCoy and Rebecca Alexander about the unique experience of living with Usher...