Art . Awareness . Research . Cure .
The Usher Syndrome Society is a non-profit that uses the arts, educational events, and collaboration to raise awareness and funds for treatments and a cure for Usher syndrome (USH).
Usher syndrome is the most common genetic cause of combined deafness and blindness.
Learn more
Our campaign is to raise awareness and funds for Usher syndrome by giving it
a face and a voice.
Take a look.
Photojournalism and an experiential event
can create empathy and awareness
for Usher syndrome
Read more.
Artisan goods that bring awareness to our senses and raises funds to find treatments and a cure for Usher syndrome.
Details here.
Six Years after Taylor Field received a cochlear implant, she started noticing difficulty driving at night, seeing at distances and increased strain on her eyes.
Read her story.
All our current and upcoming events will be updated here, stay tuned for what's ahead.
Keep up with the latest news from the Usher Syndrome Society
CLICK HERE to join our mailing list to stay up-to-date with our SHINE A LIGHT and SIGHT SOUND & STRENGTH events as well as our growing TACTILE COLLECTION of artisan goods.
Thank you!
