Art . Awareness . Research . Cure .
The Usher Syndrome Society is a non-profit that uses the arts, educational events, and collaboration to raise awareness and funds for treatments and a cure for Usher syndrome (USH).
Usher syndrome is the most common genetic cause of combined deafness and blindness.
Learn more
Our campaign is to raise awareness and funds for Usher syndrome by giving it
a face and a voice.
Take a look.
Photojournalism and an experiential event
can create empathy and awareness
for Usher syndrome
Read more.
We are committed to supporting specific needs for promising Usher syndrome research.
Learn more about our latest grant.
Artisan goods that bring awareness to our senses and raises funds to find treatments and a cure for Usher syndrome.
Details here.
Featured Stories
Hannah is 27 years old and is on a mission to see the world before she loses both her eyesight and hearing due to Usher syndrome.
Watch Hannah's Story.
Rebecca Alexander is a warrior of strength and courage. She refuses to lose her drive and zest for life, rising above every challenge she faces.
Watch A Luminary Story.
Shawn has documented his life of living with Usher syndrome and has shared his stories with the USH Society for the last several years.
View Shawn's Story.
Tune in to over 16 short films, where we talk to real people living with Usher syndrome.
Watch Sense Stories.
Current and Upcoming Events
All our current and upcoming events will be updated here, stay tuned for what's ahead.
News
Keep up with the latest news from the Usher Syndrome Society
CLICK HERE to join our mailing list to stay up-to-date with our SHINE A LIGHT and SIGHT SOUND & STRENGTH events as well as our growing TACTILE COLLECTION of artisan goods.
Thank you!
