Usher Syndrome Society

Awareness . Research . Cure .

The Usher Syndrome Society is a non-profit 501(c)3 that uses storytelling through the arts, educational events, and collaboration to raise public awareness and funds for research to find treatments and a cure for Usher syndrome (USH). The USH Society gives a face and a voice to those living with USH, making this invisible disease visible.

Usher syndrome is the most common genetic cause of combined deafness and blindness.
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The Usher Syndrome Society has donated over $1,000,000 to accelerate Usher syndrome research.

The Usher Syndrome Society is bringing awareness and funding to Usher syndrome through photojournalism and storytelling.