The Usher Syndrome Society is a non-profit that uses the arts, educational events, and collaboration to raise awareness and funds for treatments and a cure for Usher syndrome (USH).
Usher syndrome is the most common genetic cause of combined deafness and blindness.
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Our campaign is to raise awareness and funds for Usher syndrome by giving it
a face and a voice.
Take a look.
Photojournalism and an experiential event
can create empathy and awareness
for Usher Syndrome
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We are proud to share Peggy Borst's story of living with USH 2A. Peggy is a board member of the USH Society and works hard spreading awareness and raising funds
Take a look.
Artisan goods that bring awareness to our senses and raises funds to cure Usher syndrome.100% of the proceeds from the sale of these products go back to the Usher Syndrome Society for Usher syndrome research.
All our current and upcoming events will be updated here, stay tuned for what's ahead.
Good beer, good food, good friends and a great cause at Harpoon Brewery as we explored senses lost and found. Featuring blind tasting, sound simulation, and a conversation with Rebecca Alexander.
We were excited to see our full Shine A Light Portrait Exhibit featured at the Cleveland Museum of Art at the Future Vision Foundation's Vision Awards.
