The Usher Syndrome Society is a non-profit that uses the Arts and Educational events to raise awareness and funds for Usher syndrome (USH) to accelerate a cure.
Usher syndrome is the most common genetic cause of combined deafness and blindness.
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Our campaign is to raise awareness and funds for Usher syndrome by giving it
a face and a voice.
Take a look.
Photojournalism and an experiential event
can create empathy and awareness
for Usher Syndrome
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We are proud to share Peggy Borst's story of living with USH 2A. Peggy is a board member of the USH Society and works hard spreading awareness and raising funds
Take a look.
Artisan goods that bring awareness to our senses and raises funds to cure Usher syndrome.100% of the proceeds from the sale of these products go back to the Usher Syndrome Society for Usher syndrome research.
All our current and upcoming events will be updated here, stay tuned for what's ahead.
July 13, 2019 Shine A Light on Usher Syndrome with Portraits, Stories, and TACTILE Tees at the Usher Syndrome Coalition 11th Annual Connections Conference in Philadelphia.
May 19th 2019, Allison DeMeo and Kelly Callahan, both Sophomores at Boston College, will be running a Superhero Half-Marathon in honor of Alison's cousin, Wils, who has USH2A
