Usher Syndrome Society
AWARENESS . RESEARCH . CURE
The Usher Syndrome Society is a non-profit 501(c)3 that uses storytelling through the arts, educational events, and collaboration to raise public awareness and funds for research to find treatments and a cure for Usher syndrome (USH). The USH Society gives a face and a voice to those living with USH, making this invisible disease visible.
Usher syndrome is the most common genetic cause of combined deafness and blindness.