Art . Awareness . Research . Cure
The Usher Syndrome Society is a non-profit that uses the arts, educational events, and collaboration to raise awareness and funds for treatments and a cure for Usher syndrome (USH).
Usher syndrome is the most common genetic cause of combined deafness and blindness.
Learn more
Our campaign is to raise awareness and funds for Usher syndrome by giving it
a face and a voice.
Take a look.
Photojournalism and an experiential event
can create empathy and awareness
for Usher Syndrome
Read more.
In honor of the debut of Mani G. Iyer's poetry book we are featuring this incredible man
Meet Mani.
Artisan goods that bring awareness to our senses and raises funds to cure Usher syndrome.100% of the proceeds from the sale of these products go back to the Usher Syndrome Society for Usher syndrome research.
All our current and upcoming events will be updated here, stay tuned for what's ahead.
Rebecca Alexander will co-lead a spin class to raise funds for Usher syndrome following the class she will sign her book Not Fade Away
Good beer, good food, good friends and a great cause at Harpoon Brewery as we explored senses lost and found. Featuring blind tasting, sound simulation, and a conversation with Rebecca Alexander.
