The Usher Syndrome Society is a non-profit that uses the Arts and Educational events to raise awareness and funds for Usher syndrome (USH) to accelerate a cure.
Usher syndrome is the most common genetic cause of combined deafness and blindness.
Learn more
We are proud to share Peggy Borst's story of living with USH 2A. Peggy is a board member of the USH Society and works hard spreading awareness and raising funds
Take a look.
Photojournalism and an experiential event
can create empathy and awareness
for Usher Syndrome
Read more.
Our campaign is to raise awareness and funds for Usher syndrome by giving it
a face and a voice.
Take a look.
Artisan goods that bring awareness to our senses and raises funds to cure Usher syndrome.100% of the proceeds from the sale of these products go back to the Usher Syndrome Society for Usher syndrome research.
All our current and upcoming events will be updated here, stay tuned for what's ahead.
March 25, 2019 On behalf of the Usher Syndrome Society, Rebecca Alexander will be speaking at Boston University Sargent College about her personal journey living with Usher syndrome. We will also feature our traveling Portrait exhibit. This event is open to the public.
On April 6, 2019 Brendon Ayanbadejo and Rebecca Alexander will lead a powerful workout class that emphasizes the importance of using our inner strength to overcome any challenge we face. We will also feature our traveling Portrait Exhibit.
