Every Second counts
A groundbreaking awareness campaign to change the future of Usher syndrome
“Every Second Counts” is a call to action and a vivid exploration into the lives of those affected by Usher syndrome, a rare genetic disorder causing the progressive loss of combined deafness and blindness. The campaign underscores the sense of urgency felt by individuals living with Usher syndrome, who are seeking to live full, meaningful lives, while actively striving to find effective treatments and ultimately, a cure.
CAMPAIGN AWARDS & RECOGNITIONS
The Drum Awards 2024
Won Gold for Media: Charity or Not for Profit
Givsly Impact Awards 2024
Winner in Resourceful Responsibility Category
When you are going deaf and blind
Every Second Counts
A prominent voice featured in the Every Second Counts campaign is award-winning author, psychotherapist, keynote speaker, disability rights advocate, and extreme athlete, Rebecca Alexander. In this 30-second commercial, Rebecca, who is living with Usher syndrome, provides an authentic and intimate perspective on this rare disease aimed to educate and inspire hope.
When you are going deaf and blind
Every Second Counts
A prominent voice featured in the Every Second Counts campaign is award-winning author, psychotherapist, keynote speaker, disability rights advocate, and extreme athlete, Rebecca Alexander. In this 30-second commercial, Rebecca, who is living with Usher syndrome, provides an authentic and intimate perspective on this rare disease aimed to educate and inspire hope.
Shining a light on Usher syndrome
Times Square Takeover
The “Every Second Counts” campaign is featured on nine iconic billboards in the heart of New York City – Times Square. The billboards showcase the powerful photographs capturing the diversity of the USH community from our Shine A Light on Usher Syndrome global portrait exhibit, alongside the arresting footage of Rebecca Alexander, a symbol of strength and the face of our campaign.
Rebecca alexander spreads the message
Today Show Feature
Following our Times Square takeover, Rebecca Alexander and the Usher Syndrome Society were invited by Peter Alexander to appear on the Today Show and NBC News Now!
Rebecca alexander spreads the message
Today Show Feature
Following our Times Square takeover, Rebecca Alexander and the Usher Syndrome Society were invited by Peter Alexander to appear on the Today Show and NBC News Now!
IN AND OUT-OF-HOME
DIGITAL BANNERS & MEDIA
Our ongoing campaign has been formatted for all types of digital banners and media displays. Some of the more prominent placements of the campaign include the top of taxi cabs in a number of cities, LinkNYC digital billboards, and as digital banners on a number of major online platforms (Buzzfeed, CNN, FOX, Wall Street Journal, SiriusXM, IHeart, Spotify, Fandom, and more). This diverse network of channels continue to highlight the Every Second Counts campaign and help us reach the public during their daily activities.
You Can Help
Currently there are no treatments or cure for Usher syndrome, but the Usher Syndrome Society is working hard to change that. 100% of donations made to the Usher Syndrome Society go directly towards funding groundbreaking hearing and vision research in labs around the world.