Conversations with ush

Live interviews that educate and empower

Conversations with USH is a live interview series moderated by Rebecca Alexander highlighting the experiences of individuals from around the world navigating life with Usher syndrome. Each conversation invites you into an intimate dialogue where guests share their stories, triumphs, and the unique ways they adapt and thrive. Conversations with USH aims to foster a greater understanding of Usher syndrome, dispel misconceptions, and build a community of support, strength, and empowerment.

Through the Fog with Brenden Sorensen

In this conversation, Rebecca sat down with accomplished composer and pianist, Brenden Sorensen at the Grand Canyon University in Phoenix, AZ. Brenden is progressively losing both his vision and hearing due to Usher syndrome, yet he does not let that stop him from pursuing his love for music, composing, and the art of improv.

Through the Fog with Brenden Sorensen

In this conversation, Rebecca sat down with accomplished composer and pianist, Brenden Sorensen at the Grand Canyon University in Phoenix, AZ. Brenden is progressively losing both his vision and hearing due to Usher syndrome, yet he does not let that stop him from pursuing his love for music, composing, and the art of improv.

An Evening of Conversation with Steven McCoy

Steven McCoy, the first recognized black deafblind journalist in the US, and Rebecca Alexander took the stage with moderator and esteemed media personality, Danita Chantel to talk about the unique experience of living with Usher syndrome. Rebecca and Steven addressed a range of topics including how to cultivate a deeply meaningful life in the face of adversity, using vulnerability as a tool for empowerment, finding comfort with discomfort, grief and loss, intersectionality, self-advocacy, and beyond.

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