Conversations with ush
Interviews that educate and empower
Conversations with USH is a live interview series moderated by Rebecca Alexander highlighting the experiences of individuals from around the world navigating life with Usher syndrome. Each conversation invites you into an intimate dialogue where guests share their stories, triumphs, and the unique ways they adapt and thrive. Conversations with USH aims to foster a greater understanding of Usher syndrome, dispel misconceptions, and build a community of support, strength, and empowerment.
Conversation with Becca Meyers
On September 20th, 2024, the Usher Syndrome Society hosted Conversations with USH: Becca Meyers in honor of Usher Syndrome Awareness Day. The event showcased a short film created by The Usher Syndrome Society about Paralympic swimmer Becca Meyers and her experience as a world champion athlete living with Usher syndrome. Following the debut of the film, Rebecca Alexander, a psychotherapist and recognized keynote speaker who also lives with Usher syndrome, engaged in a heartfelt interview with Becca about her ongoing journey.
Through the Fog with Brenden Sorensen
In this conversation, Rebecca sat down with accomplished composer and pianist, Brenden Sorensen at the Grand Canyon University in Phoenix, AZ. Brenden is progressively losing both his vision and hearing due to Usher syndrome, yet he does not let that stop him from pursuing his love for music, composing, and the art of improv.
Through the Fog with Brenden Sorensen
In this conversation, Rebecca sat down with accomplished composer and pianist, Brenden Sorensen at the Grand Canyon University in Phoenix, AZ. Brenden is progressively losing both his vision and hearing due to Usher syndrome, yet he does not let that stop him from pursuing his love for music, composing, and the art of improv.
An Evening of Conversation with Steven McCoy
Steven McCoy, the first recognized black deafblind journalist in the US, and Rebecca Alexander took the stage with moderator and esteemed media personality, Danita Chantel to talk about the unique experience of living with Usher syndrome. Rebecca and Steven addressed a range of topics including how to cultivate a deeply meaningful life in the face of adversity, using vulnerability as a tool for empowerment, finding comfort with discomfort, grief and loss, intersectionality, self-advocacy, and beyond.
Sense Stories
Good Morning Saul
What are sense stories?
Sense Stories is an awareness initiative designed to educate the world about Usher syndrome through video storytelling of everyday life with Usher syndrome. Featuring full-length interviews and shorter clips from those interviews, Sense Stories offers a platform for individuals affected by Usher syndrome to candidly share their experiences. Through these narratives, viewers gain insight into the resilience and daily triumphs of those navigating life with Usher syndrome, alongside the challenges and uncertainties it presents.
Qais Modeling
Qais Swimming
Rose the Athlete
Rose The Artist
Blind Love Woodburning
Par for the Course of Life
One Amazing Ride
Telling the World
Being Competitive
Living for Today
Dogs Know Everything
Making Morning Muffins
Facing the Fears of Fatherhood
Competing with Usher syndrome
Being Positive
From Shame to Cane
Keeping My Memories
See The Stars
My Ears Aren’t In
Hole In The Straw
Tap Happily Happily