Conversations with ush
Live interviews that educate and empower
Conversations with USH is a live interview series moderated by Rebecca Alexander highlighting the experiences of individuals from around the world navigating life with Usher syndrome. Each conversation invites you into an intimate dialogue where guests share their stories, triumphs, and the unique ways they adapt and thrive. Conversations with USH aims to foster a greater understanding of Usher syndrome, dispel misconceptions, and build a community of support, strength, and empowerment.
Conversation with Becca Meyers
On September 20th, 2024, the Usher Syndrome Society hosted Conversations with USH: Becca Meyers in honor of Usher Syndrome Awareness Day. The event showcased a short film created by The Usher Syndrome Society about Paralympic swimmer Becca Meyers and her experience as a world champion athlete living with Usher syndrome. Following the debut of the film, Rebecca Alexander, a psychotherapist and recognized keynote speaker who also lives with Usher syndrome, engaged in a heartfelt interview with Becca about her ongoing journey.
Through the Fog with Brenden Sorensen
In this conversation, Rebecca sat down with accomplished composer and pianist, Brenden Sorensen at the Grand Canyon University in Phoenix, AZ. Brenden is progressively losing both his vision and hearing due to Usher syndrome, yet he does not let that stop him from pursuing his love for music, composing, and the art of improv.
Through the Fog with Brenden Sorensen
In this conversation, Rebecca sat down with accomplished composer and pianist, Brenden Sorensen at the Grand Canyon University in Phoenix, AZ. Brenden is progressively losing both his vision and hearing due to Usher syndrome, yet he does not let that stop him from pursuing his love for music, composing, and the art of improv.
An Evening of Conversation with Steven McCoy
Steven McCoy, the first recognized black deafblind journalist in the US, and Rebecca Alexander took the stage with moderator and esteemed media personality, Danita Chantel to talk about the unique experience of living with Usher syndrome. Rebecca and Steven addressed a range of topics including how to cultivate a deeply meaningful life in the face of adversity, using vulnerability as a tool for empowerment, finding comfort with discomfort, grief and loss, intersectionality, self-advocacy, and beyond.