Docuseries and Films
Living with Usher syndrome:
A cinematic journey
THIS IS USH: BECCA MEYERS
Becca is a 2x Paralympian, 3x Gold Medalist, multiple world record holder, and is also living with the rare disease, Usher syndrome. This is her story.
Through the fog
In January 2024, The Usher Syndrome Society hosted Conversations with USH at Grand Canyon University in Phoenix, AZ to spotlight Brenden Sorensen, an accomplished composer and pianist. Brenden is progressively losing both his vision and hearing due to Usher syndrome, yet he does not let that stop him from pursuing his love for music, composing, and the art of improv.
Through the fog
In January 2024, The Usher Syndrome Society hosted Conversations with USH at Grand Canyon University in Phoenix, AZ to spotlight Brenden Sorensen, an accomplished composer and pianist. Brenden is progressively losing both his vision and hearing due to Usher syndrome, yet he does not let that stop him from pursuing his love for music, composing, and the art of improv.
A luminary Story: Rebecca Alexander
Living with Usher syndrome is hard and it’s emotional. It has allowed me to feel so incredibly alive. My biggest hope now is that the impact of what I do with my life will encourage other people who face similar challenges or even different challenges to confront their fears. So many of us live in fear and we need to learn how to live with our fears.” – Rebecca Alexander
See the World: Hannah Corderman
Hannah Corderman is on a mission to see the world before she loses both her eyesight and hearing due to Usher syndrome. She is in a race against time. In this story, Hannah shares with us her fears, her inspirations, and her hope.
See the World: Hannah Corderman
Hannah Corderman is on a mission to see the world before she loses both her eyesight and hearing due to Usher syndrome. She is in a race against time. In this story, Hannah shares with us her fears, her inspirations, and her hope.
International Women’s Day GapFit Campaign
In honor of International Women’s Day, this Gap campaign celebrates Usher Syndrome Society board members Rebecca Alexander and Hannah Corderman. Hannah designed this GapFit shirt using Rebecca’s inspirational mantra: Breathe In Peace. Breathe Out Fear.
Usher Syndrome Awareness Day Salsa Class
There’s no greater unifier than the solid beat of a beautiful song. We gathered with members of the USH Community, people living with all 3 types of Usher syndrome, and learned to dance! We can’t think of a better way to celebrate Usher Syndrome Awareness Day, than to share this story of joy, life and community spirit.
Usher Syndrome Awareness Day Salsa Class
There’s no greater unifier than the solid beat of a beautiful song. We gathered with members of the USH Community, people living with all 3 types of Usher syndrome, and learned to dance! We can’t think of a better way to celebrate Usher Syndrome Awareness Day, than to share this story of joy, life and community spirit.
Help us find treatments and a cure.