News + Events
Stay informed, inspired, and connected
Check out our upcoming events, see the latest research updates, or support a personal fundraiser for a member of the Usher Syndrome community!
Past Events
USH X Topgolf 2024
This year’s annual Sight, Sound, & Strength Fundraiser was held at Topgolf Boston-Canton. The event was a huge success and marked our largest annual fundraiser so far!
$200,000+
Raised for USH Research
250+
Participants & volunteers
Campaigns
Every Second Counts
“Every Second Counts” is a groundbreaking awareness campaign featured on nine Times Square billboards and throughout digital streaming platforms across the country. The campaign underscores the sense of urgency felt by individuals living with Usher syndrome, who are seeking to live full, meaningful lives, while actively striving to find effective treatments and ultimately a cure.
Personal Fundraisers
With us, it’s personal. Help us touch more lives affected by USH
Do you or someone you know have Usher syndrome and want to help raise money for Usher syndrome research? We can set up a dedicated fundraising page for you on our website to collect donations that will go directly to Usher syndrome research. Check out our current fundraisers below or contact us to set up a personal fundraising page.
News + Events
See what we’ve accomplished so far
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Contact Us
Join our community! We welcome you to reach out
To set up a personal fundraising page, volunteer, or host an event please contact us at: