Usher Syndrome Society
Financials
The Usher Syndrome Society is committed to managing all donations with responsibility and transparency, ensuring each contribution is directed to its intended purpose, whether that be a specific subtype, research initiative, or awareness campaign.
The Usher Syndrome Society is the only organization dedicated to advancing treatments for all types of Usher syndrome. Your support makes it possible to identify potential therapeutic targets, develop innovative approaches, conduct essential preclinical studies to assess safety and effectiveness, initiate clinical trials, and support the process of bringing new treatments into clinical practice.
The Usher Syndrome Society takes all contributions seriously and we carefully track all donations to ensure they are used for their intended purpose. We undergo an annual independent audit as required by law, and our IRS Form 990 is available on our website through Candid.
If you would like a copy of our most recent audit report, please contact [email protected]
Annual Reports
2025 Impact Report
Explore more Blog posts
Beyond the Water: Swimming Alcatraz for the Next Generation by Meredith Tyree
blogBeyond the Water: Swimming Alcatraz for the Next Generationby Meredith TyreeOctober 26, 2026 On October 17, 2026, I joined an extraordinary group of swimmers for USH X Swim Alcatraz, an event hosted by the Usher Syndrome Society to raise awareness and funds for...
From the Fast Lane to the White Cane by Carlos Harris
blogFrom the Fast Lane to the White Caneby Carlos HarrisSeptember 28, 2026 Life in the Fast Lane My name is Carlos and I have Usher syndrome type 2a. I am a 67-year-old gay man, am a 40-year HIV survivor and for the first half of my life, my world moved at a...
Swimming for a Cure: Support USH X Swim Alcatraz 2026 by Pam Aasen
blogSwimming for a Cure: Support USH X Swim Alcatraz 2026by Pam AasenSeptember 17, 2026 In 2009, when Ethan was seven and Gavin was five, our family received the Usher syndrome type 1b diagnosis that completely rewrote our lives. We already knew our sons had...
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