Past Events • December 12, 2022
This is USH: An Evening of Conversation
On December 12th, 2022, The Usher Syndrome Society hosted the first This is USH event, where we heard from Steven McCoy and Rebecca Alexander about the unique experience of living with Usher syndrome. Steven McCoy is the first recognized black deafblind journalist in the US and Rebecca Alexander is an award-winning author and psychotherapist.
The conversation was moderated by esteemed media personality, Danita Chantel, who guided Steven and Rebecca throughout a range of conversation topics, including: How to cultivate a deeply meaningful life in the face of adversity, using vulnerability as a tool for empowerment, finding comfort with discomfort, grief and loss, intersectionality, and self-advocacy.
The Usher Syndrome Society looks forward to hosting more of these intimate dialogues and sharing the complex realities of life with Usher syndrome.
More Events
Conversations With USH: Becca Meyers
Past events • September 20, 2024Conversations with USH: Becca MeyersOn September 20th, 2024, the Usher Syndrome Society hosted Conversations with USH in honor of Usher Syndrome Awareness Day. Conversations with USH is a live interview series moderated by Rebecca...
2024 Shine a Light Portrait Sign-Ups
2024 connections conference portrait sign upIt's time to share your storyWhat is the shine a light on usher syndrome exhibit?Shine a Light on Usher Syndrome is one of the Usher Syndrome Society's primary awareness initiatives designed to share the faces and stories of...
Lobbying for USH
Lobby-ing for ushAn Awareness Campaign for Usher Syndrome in Lobbies Around BostonLobby-ing for USH is an opportunity to showcase our powerful Shine A Light on Usher Syndrome Photojournalism Exhibit in prominent building lobbies around the city of Boston (and...