Past Events • November 28, 2023
USH X SPIN 2023
Our USH X Spin Boston Ping Pong fundraiser was an enormous success. The incredible support we received from everyone was overwhelming. Thanks to you, we were able to raise over $140,000 which will go directly to our Translational Research Grants for 2024. Together we are changing the future of Usher syndrome.
This event would not have been possible without the generous support of our sponsors. We truly appreciate you and the difference you are helping us make in finding treatments and a cure for Usher syndrome.
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More Events
2025 Shine a Light Portrait Sign-Ups
USH2025 International symposium on usher syndromeJoin the Shine a Light ExhibitWhat is the shine a light on usher syndrome exhibit?The Shine a Light on Usher Syndrome Portrait Exhibit is one of the Usher Syndrome Society's primary awareness initiatives to share the...
Conversations with USH: Brenden Sorensen
Past events • January 10, 2024Conversations with USH: Brenden Sorensen On January 10, 2024, the Usher Syndrome Society hosted our second Conversations with USH event. This special evening featured Brenden Sorensen, a talented composer and pianist living with...
USH X Topgolf 2024
Past Events • December 3, 2024USH X TOPGOLF 2024On December 3rd, 2024, The Usher Syndrome Society hosted our annual Sight, Sound, & Strength Fundraiser at Topgolf Boston-Canton. This year marked our largest fundraising event so far and we could not be more...