Past Events • November 28, 2023
USH X SPIN 2023
Our USH X Spin Boston Ping Pong fundraiser was an enormous success. The incredible support we received from everyone was overwhelming. Thanks to you, we were able to raise over $140,000 which will go directly to our Translational Research Grants for 2024. Together we are changing the future of Usher syndrome.
This event would not have been possible without the generous support of our sponsors. We truly appreciate you and the difference you are helping us make in finding treatments and a cure for Usher syndrome.
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More Events
2026 Shine a Light Portrait Sign ups
2026 connections conference portrait sign upJoin the Shine a Light on Usher syndrome Portrait ExhibitThe Shine a Light on Usher Syndrome Exhibit is the largest collection of photographs and stories from people around the world living with Usher syndrome, designed to...
USH X Swim Alcatraz 2026
Upcoming Events • October 17, 2026USH X Swim Alcatraz 2026This October, the Usher Syndrome Society will host a swim from Alcatraz to shore in honor of a crossing that Rebecca Alexander completed more than a decade ago. The event will include 20 swimmers in total: 10...
Cocktails and Conversations with USH in Chicago
Past Events • April 16, 2026Cocktails and Conversations with USH in ChicagoOn April 16th, 2026, the Usher Syndrome Society hosted Cocktails and Conversations with USH in Chicago at the Blue Door Farm Stand. This sold out event featured an authentic, humorous, and...