Rebecca Alexander and the Usher Syndrome Society present a series of virtual events where Rebecca will read excerpts from her book and discuss the “ then” and “now” of living with Usher syndrome, the most common genetic cause of combined deafblindness.
Rebecca Alexander is an award-winning author, psychotherapist, extreme athlete, disability rights advocate, and motivational speaker who is living with the rare disease, Usher syndrome, which means she is progressively losing both her vision and hearing. Today, about 10 degrees of her vision remains and without the use of 2 cochlear implants, she is completely deaf.
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