Daniel

When Daniel was just 11 months old, we were told he was profoundly deaf. It was a heartbreaking shock. Fortunately, at 14 months, he received cochlear implants — and for the first time, we saw the wonder in his eyes as he began to hear the world around him.

Throughout his childhood, Daniel faced constant motor and balance challenges, learning to walk, run, and play without the sense of balance most children take for granted. He did it all with determination, courage, and a radiant smile.

Then, at 12 years old, came the diagnosis that changed everything: Usher Syndrome Type 1D — a rare genetic disease that causes deafness from birth, severe balance difficulties, and progressive vision loss. It explained everything Daniel had faced since infancy, but it also brought a devastating truth: he would gradually lose his vision.

Today, Daniel has already lost his night vision and part of his visual field and each year his sight becomes more fragile. The most painful part is knowing there is no cure, and even more devastating, no active research focused specifically on his gene. Yet the scientific tools already exist — what’s missing are the funds to make this research possible.

This is why we are asking for your support.

Your donation can change the future — not only for Daniel, but for all children and families living with Usher 1D. Every contribution helps bring us closer to the groundbreaking research that could lead to treatments, and one day, a cure.

Please stand with us. Together, we can turn despair into hope and give Daniel — and others like him — the brighter future they deserve. Every gift matters. Every act of kindness counts. And with your help, hope becomes possible.