Welcome to our @Home Photo Booth Exhibit

Every year the Usher Syndrome Society photographs people from all over the world living with Usher syndrome to add to our Global Shine A Light on Usher Syndrome exhibit. This year we went virtual at the USH2020 Connections Conference hosted by the Usher Syndrome Coalition. The goal of every exhibit is to raise awareness for Usher syndrome by sharing personal stories with the hope of identifying more people who are living with USH to ultimately find treatments and a cure.