Who We Are

Board & Staff

Sophia Boccard

Sophia Boccard is a digital marketing strategist with over a decade of marketing experience in the entertainment industry. “As someone who was born with moderate to severe hearing loss, I've always accepted the loss of hearing as a part of who I am. After being diagnosed with Usher syndrome type 2a in 2012, I realized that a cure for both hearing and vision was something I needed to fight for,” Sophia says. Sophia looks forward to joining Usher Syndrome Society and sharing her experience living with Usher syndrome to raise awareness and find better therapies and cures.