Jon Schultz

Jon was diagnosed with Usher Syndrome 3A in his early twenties. As a husband and father, he is dedicated to finding a healthy balance between supporting research for a cure and deeply appreciating the day-to-day. Jonathon lives in Chicago with his wife, Lizzie, their two children, and their two dogs.  Watch the video below to hear more of Jon’s story and perspective on living with Usher syndrome.