Past Events • November 19, 2019
Sight, Sound, Strength: Harpoon Brewery
On November 19, 2019 the Usher Syndrome Society hosted our annual experiential fundraiser event at Harpoon Brewery in Boston, MA to bring awareness and funding to support Usher syndrome.
The event included an array of experiential stations that asked participants to connect to their senses. These stations ranged from a blind beer tasting and blind taco bar to a silent disco featuring music with simulated hearing loss.
The event also featured an educational component and Rebecca Alexander took the floor to share with attendees her experience of losing her vision and hearing due to Usher syndrome and how she has found strength in her journey.









Click here to learn more about our Sight, Sound, & Strength Events
More Events
2025 Shine a Light Portrait Sign-Ups
USH2025 International symposium on usher syndromeJoin the Shine a Light ExhibitWhat is the shine a light on usher syndrome exhibit?The Shine a Light on Usher Syndrome Portrait Exhibit is one of the Usher Syndrome Society's primary awareness initiatives to share the...
Conversations with USH: Brenden Sorensen
Past events • January 10, 2024Conversations with USH: Brenden Sorensen On January 10, 2024, the Usher Syndrome Society hosted our second Conversations with USH event. This special evening featured Brenden Sorensen, a talented composer and pianist living with...
USH X Topgolf 2024
Past Events • December 3, 2024USH X TOPGOLF 2024On December 3rd, 2024, The Usher Syndrome Society hosted our annual Sight, Sound, & Strength Fundraiser at Topgolf Boston-Canton. This year marked our largest fundraising event so far and we could not be more...