Past Events • November 19, 2019
Sight, Sound, Strength: Harpoon Brewery
On November 19, 2019 the Usher Syndrome Society hosted our annual experiential fundraiser event at Harpoon Brewery in Boston, MA to bring awareness and funding to support Usher syndrome.
The event included an array of experiential stations that asked participants to connect to their senses. These stations ranged from a blind beer tasting and blind taco bar to a silent disco featuring music with simulated hearing loss.
The event also featured an educational component and Rebecca Alexander took the floor to share with attendees her experience of losing her vision and hearing due to Usher syndrome and how she has found strength in her journey.
Click here to learn more about our Sight, Sound, & Strength Events
More Events
USH X Urban Wild 2026
Upcoming events • Tuesday, December 1, 2026USH X Urban Wild 2026You are invited to a very special evening at urban wild, filled with live music, delicious food & drink, bowling, and most importantly, raising critical funds for usher syndrome research.Please join...
2026 Shine a Light Portrait Sign ups
2026 connections conference portrait sign upJoin the Shine a Light on Usher syndrome Portrait ExhibitThe Shine a Light on Usher Syndrome Exhibit is the largest collection of photographs and stories from people around the world living with Usher syndrome, designed to...
USH X Swim Alcatraz 2026
Upcoming Events • October 17, 2026USH X Swim Alcatraz 2026This October, the Usher Syndrome Society will host a swim from Alcatraz to shore in honor of a crossing that Rebecca Alexander completed more than a decade ago. The event will include 22 swimmers in total: 10...



