Past Events • November 19, 2019
Sight, Sound, Strength: Harpoon Brewery
On November 19, 2019 the Usher Syndrome Society hosted our annual experiential fundraiser event at Harpoon Brewery in Boston, MA to bring awareness and funding to support Usher syndrome.
The event included an array of experiential stations that asked participants to connect to their senses. These stations ranged from a blind beer tasting and blind taco bar to a silent disco featuring music with simulated hearing loss.
The event also featured an educational component and Rebecca Alexander took the floor to share with attendees her experience of losing her vision and hearing due to Usher syndrome and how she has found strength in her journey.
Click here to learn more about our Sight, Sound, & Strength Events
More Events
Cocktails and Conversations with USH in Chicago
Upcoming events • April 16, 2026Cocktails and Conversations with USHin ChicagoOn April 16th, 2026, you are invited to join the Usher Syndrome Society at the Blue Door Farm Stand for Cocktails and Conversations with USH in Chicago. Experience a powerful dialogue led by...
USH x Urban Wild 2025
Past events • December 2, 2025USH X Urban Wild 2025The Usher Syndrome Society’s annual fundraising event is dedicated to raising vital funds for Usher syndrome (USH) research, while simultaneously educating the public about living with this rare disease. The evening...
Times Square Takeover for Usher Syndrome Awareness Day
Past events • September 20, 2025Times Square Takeover for Usher Syndrome Awareness Day 2025On September 20th, 2025 at 11AM, The Usher Syndrome Society took over multiple Times Square billboards in the heart of NYC for a second time! This year's takeover took...



