Past Events • Summer 2018
Strike out USH
In partnership with the Usher Syndrome Society, Rebecca Alexander was selected to throw the ceremonial first pitch at major league baseball games around the country. This campaign lasted throughout the summer of 2018, with Rebecca and the Usher Syndrome Society throwing the first pitch for the Red Sox, Yankees, Chicago Cubs, and Tampa Bay Rays, each at their respective home fields.
With the goal of raising awareness and research funds for Usher Syndrome, the #StrikeOutUSH campaign included a creative and captivating PSA that featured portraits from the Shine a Light on Usher Syndrome Exhibit, which played at the start of each game.
More Events
See Us, Hear Us: An Immersive Gallery Fundraiser
Past Events • October 23, 2025See Us, Hear Us: An Immersive Exhibition for Usher syndrome On Thursday, October 23rd, 2025, the Usher Syndrome Society HOSTED SEE US, HEAR US: An immersive digital experience at ARTECHOUSE NYC, bringING a decade of storytelling to life....
Conversations with USH: Brenden Sorensen
Past events • January 10, 2024Conversations with USH: Brenden Sorensen On January 10, 2024, the Usher Syndrome Society hosted our second Conversations with USH event. This special evening featured Brenden Sorensen, a talented composer and pianist living with...
USH X Topgolf 2024
Past Events • December 3, 2024USH X TOPGOLF 2024On December 3rd, 2024, The Usher Syndrome Society hosted our annual Sight, Sound, & Strength Fundraiser at Topgolf Boston-Canton. This year marked our largest fundraising event so far and we could not be more...



