A grid of white and light blue dots forming the Usher Syndrome Society Logo

Past Events • December 12, 2022

This is USH: An Evening of Conversation

On December 12th, 2022, The Usher Syndrome Society hosted the first This is USH event, where we heard from Steven McCoy and Rebecca Alexander about the unique experience of living with Usher syndrome. Steven McCoy is the first recognized black deafblind journalist in the US and Rebecca Alexander is an award-winning author and psychotherapist.

 

The conversation was moderated by esteemed media personality, Danita Chantel, who guided Steven and Rebecca throughout a range of conversation topics, including: How to cultivate a deeply meaningful life in the face of adversity, using vulnerability as a tool for empowerment, finding comfort with discomfort, grief and loss, intersectionality, and self-advocacy.

 

The Usher Syndrome Society looks forward to hosting more of these intimate dialogues and sharing the complex realities of life with Usher syndrome.

Danita Chantel, Nancy Corderman, Steven McCoy, and Rebecca Alexander stand in front of Harvard Medical School letters at the This is USH event
Two men are chatting at a table in the reception at the This is USH: An Evening of Conversation.
Two men are seated in the audience at the This is USH: An Evening of Conversation event
An image of Danita Chantel, Rebecca Alexander, and Steven McCoy on stage at the This is USH: AN Evening of Conversation
An image of two people standing closely together at reception of This is USH: An Evening of Conversation
A portrait set up next to a wine bar in the reception of the This is USH: An Evening of Conversation event
An image of a woman in the audience at the This is USH event communicating through ASL
Three people standing around a table talking at the reception of the this is USH: An Evening of Conversation event

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