Usher Syndrome Society
Financials
The Usher Syndrome Society is committed to managing all donations with responsibility and transparency, ensuring each contribution is directed to its intended purpose, whether that be a specific subtype, research initiative, or awareness campaign.
The Usher Syndrome Society is the only organization dedicated to advancing treatments for all types of Usher syndrome. Your support makes it possible to identify potential therapeutic targets, develop innovative approaches, conduct essential preclinical studies to assess safety and effectiveness, initiate clinical trials, and support the process of bringing new treatments into clinical practice.
The Usher Syndrome Society takes all contributions seriously and we carefully track all donations to ensure they are used for their intended purpose. We undergo an annual independent audit as required by law, and our IRS Form 990 is available on our website through Candid.
If you would like a copy of our most recent audit report, please contact [email protected]
Annual Reports
2025 Impact Report
Explore more Blog posts
Finding My Way
blog Finding My Way by Olivia CastilloSeptember 30, 2025 Who am I? I am a 19 year old girl from Capitola, California and coming this fall, I will be a junior transfer at the University of California Los Angeles majoring in Linguistics. I’ve chosen this path with the...
The Winding Road to Diagnosis: My Usher Syndrome Story
blog The Winding Road to Diagnosis: My Usher Syndrome Storyby Samantha MurphySeptember 18, 2025 A Family History of Vision Loss My name is Samantha Murphy, and in January 2025, at age 52, I learned that I am going blind. I was diagnosed with Usher syndrome Type 2A,...
Motherhood, vision loss, and finding connection in unexpected places.
blog Motherhood, vision loss, and finding connection in unexpected places. by Meagan MooreSeptember 4, 2025 An Unforeseen Path There are mornings when simply getting out the door feels like an obstacle course with one child searching for a missing shoe, another in...
Help us find treatments and a cure.