Usher Syndrome Society
Financials
The Usher Syndrome Society is committed to managing all donations with responsibility and transparency, ensuring each contribution is directed to its intended purpose, whether that be a specific subtype, research initiative, or awareness campaign.
The Usher Syndrome Society is the only organization dedicated to advancing treatments for all types of Usher syndrome. Your support makes it possible to identify potential therapeutic targets, develop innovative approaches, conduct essential preclinical studies to assess safety and effectiveness, initiate clinical trials, and support the process of bringing new treatments into clinical practice.
The Usher Syndrome Society takes all contributions seriously and we carefully track all donations to ensure they are used for their intended purpose. We undergo an annual independent audit as required by law, and our IRS Form 990 is available on our website through Candid.
If you would like a copy of our most recent audit report, please contact [email protected]
Annual Reports
2025 Impact Report
Explore more Blog posts
Every Second Counts: Accelerating a Cure for Usher Syndrome
blog Every Second Counts: Accelerating a Cure for Usher Syndrome by Pamela AasenAugust 15, 2024 The Usher Syndrome Society is incredibly creative and innovative in crafting fundraising campaigns and events that not only raise vital funds but also significantly...
Journey of Self-Discovery: Navigating the Mental Challenges of Usher Syndrome
blog Journey of Self-Discovery: Navigating the Mental Challenges of Usher Syndrome by Michael ConnMarch 12, 2024 As I approach my milestone 40th birthday, I find myself reflecting back as one does. With a loving marriage, five year old twin boys, and recently settling...
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