News • November 20, 2021
The Future Vision Foundation 2021 Luminary Award
On November 20, 2021, Rebecca Alexander received the Future Vision Foundation’s Luminary Award for her advocacy work. The Usher Syndrome Society was recognized alongside Rebecca for our extraordinary commitment to raising awareness of Usher syndrome through photojournalism and film.
The Award Ceremony was hosted at the Cleveland Museum of Art and portraits from the Shine a Light on Usher Syndrome Exhibit were displayed throughout the space.
Each award recipients was featured in a film and The Usher Syndrome Society was thrilled to help Rebecca showcase her incredible accomplishments through the creation of “A Luminary Story: Rebecca Alexander”.
Related News
Shine a Light on Usher Syndrome: 2026 USH Connections Conference
News • July 18, 2025Expanding the Shine a Light on Usher Syndrome Exhibit at the 2026 Connections ConferenceAt the 2026 USH Connections Conference in Minnesota, the Usher Syndrome Society captured the portraits and stories of over 40 individuals living with Usher...
USH X Urban Wild Annual Boston Fundraiser raises over $200,000 for Usher syndrome research
News • December 2, 2025USH X Urban Wild Annual Boston Fundraiser raises over $200,000 for Usher syndrome researchThe Annual Sight, Sound, & Strength Boston Fundraiser was held at Urban Wild on Tuesday, December 2nd in honor of Giving Tuesday. Urban Wild is a...
The Usher Syndrome Society debuts a decade of storytelling during the See Us, Hear Us Immersive Exhibition at ARTECHOUSE NYC
News • October 23, 2025See Us, Hear Us Immersive Exhibition at ARTECHOUSE NYCOn Thursday, October 23rd, 2025 The Usher Syndrome Society hosted See Us, Hear Us at ARTECHOUSE NYC, sharing over a decade of photography, films, and stories. From debuting our documentary...