Sense Stories is our new way to help educate the world about Usher syndrome through video storytelling of everyday life with Usher syndrome. The current challenges in the world leave everyone feeling isolated, but the effect on those living with Usher syndrome is even more pronounced. It is in these times that it feels most important to reach out to our Usher syndrome community and tell the stories of those living with this rare disease.
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Over the next year, Rebecca Alexander will have heartfelt conversations with many people living with Usher syndrome from around the world. We will be sharing those stories here.
Expect many emotions as we get to know these incredible individuals up close.