Sense Stories

An Exploration of Usher Syndrome through Video Journalism

Sense Stories is our way to help educate the world about Usher syndrome through video storytelling of everyday life with Usher syndrome. The current challenges in the world leave everyone feeling isolated, but the effect on those living with Usher syndrome is even more pronounced. It is in these times that it feels most important to reach out to our Usher syndrome community and tell the stories of those living with this rare disease.

Rebecca Alexander will have heartfelt conversations with many people living with Usher syndrome from around the world. We will be sharing those stories here. 

Expect many emotions as we get to know these incredible individuals up close.

Do you want to share your story? contact us at