How Are We Spreading Awareness


If you want to know what's happening at the Usher Syndrome Society, you’ve come to the right place.

Be sure to check back regularly to get our latest news updates.

The Usher Syndrome Society has partnered with Wicked Good Cookies to craft a beautiful cookie gift box featuring designs from our TACTILE Collection. Every Wicked Good Cookie box gifted gives back to help find a cure for Usher syndrome.
During this holiday season give a gift that truly appeals to your senses and brings awareness and funding to the loss of our senses - hearing and seeing

This holiday season we are illuminating some local Massachusetts communities with Christmas trees trimmed with portraits of people living with Usher syndrome and cookies from Wicked Good Cookies to bring awareness and funding to help cure Usher syndrome.

Sophia Boccard, diagnosed with Usher syndrome type 2a five years ago, was part of a recent collaborative effort to raise awareness of Usher syndrome in New York City. Usher syndrome, the most common cause of deafblindness, affects four out of 100,000 babies in the United States.

NBC Boston Health Reporter Kristy Lee did an amazing job bringing awareness to Usher syndrome through an interview with Hannah Corderman and her mom Nancy Corderman, Co-founder of the Usher Syndrome Society.

The Usher Syndrome Society will bring awareness to Usher syndrome with an outdoor exhibit in Washington Square Park in New York City

In order to own the Equinox for Usher Syndrome Awareness Day, UsherKids Australia, the Usher Syndrome Society, and the Usher Syndrome Coalition are collaborating to bring global awareness to the most common genetic cause of combined deafness and blindness- Usher Syndrome.

Shine A Light On Usher Syndrome at the Rose Kennedy Greenway, Boston MA.

Arts for USH (Kidz b Kidz) helped to fund this incredible cutting edge research!

one of the winners of the Rare Artist Contest 2016 highlighting Usher syndrome

We had an amazing walk on the darkest day of the year to shine a light on Usher syndrome !

spreading awareness for Usher syndrome and our Arts for USH Winter Solstice USH Walk 2016 Needham , MA.

Come join us for our first Winter Solstice USH Walk to Shine a Light on Usher Syndrome.

When we practice mindfulness, we train our brain to refocus on current surroundings, leaving us in a more peaceful and relaxed state. If you want to practice mindfulness, check out these easy steps.