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Check out our upcoming events, see the latest research updates, or support a personal fundraiser for a member of the Usher Syndrome community!

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Past Event

USH X URBAN WILD

Tuesday, December 2, 2025

The Annual Sight, Sound, & Strength Boston Fundraiser was held at Urban Wild on Tuesday, December 2nd in honor of Giving Tuesday. Urban Wild is a restaurant, beer garden, live music venue, bowling alley, and outdoor game space located in Charlestown, MA.

$200,000+

Raised for USH Research

250+

Participants & volunteers

See Event Details
The interior of the Urban Wild venue in Charlestown featuring a state, string lights, and lots of tables
A mockup of the Artechouse NYC space featuring black and white portraits from the Shine a Light on Usher Syndrome exhibit on the walls and floor

Past events

See Us, Hear Us: An Immersive Exhibition

Thursday, October 23, 2025

On the evening of Thursday, October 23rd, The Usher Syndrome Society hosted See Us, Hear Us at ARTECHOUSE NYC, sharing over a decade of photography, films, and stories.

See Event Details

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A photo of a group of people at our Sight Sound Strength. Everyone is standing with their hands on top of one another in the center.

Contact Us

Join our community! We welcome you to reach out

To set up a personal fundraising page, volunteer, or host an event please contact us at:

781.444.5766

[email protected]