Past Events • June 3, 2023
Orangetheory Fitness X USH
On June 3, 2023, Orangetheory Fitness studios around the country came together to educate the public and raise research funds for the rare disease Usher syndrome, the leading genetic cause of combined deafness and blindness.
Together we raised thousands of dollars, all of which will go directly to critical hearing and vision research and directly impact the lives of people around the world living with Usher syndrome.
In addition to the studio classes happening simultaneously in OTF studios around the country, we held one “live” class in Park Potomac, MD where Rebecca Alexander partnered with OTF coach, Rebecca Burow to teach a powerful, inclusivity focused HIIT class. During this class, Rebecca Alexander shared her deeply meaningful story of living with Usher syndrome and the important role that fitness plays in her life.
Check out the recap video below:
Click here to learn more about our Sight, Sound, & Strength Events
More Events
2026 Shine a Light Portrait Sign ups
2026 connections conference portrait sign upJoin the Shine a Light on Usher syndrome Portrait ExhibitThe Shine a Light on Usher Syndrome Exhibit is the largest collection of photographs and stories from people around the world living with Usher syndrome, designed to...
USH X Swim Alcatraz 2026
Upcoming Events • October 17, 2026USH X Swim Alcatraz 2026This October, the Usher Syndrome Society will host a swim from Alcatraz to shore in honor of a crossing that Rebecca Alexander completed more than a decade ago. The event will include 20 swimmers in total: 10...
Cocktails and Conversations with USH in Chicago
Past Events • April 16, 2026Cocktails and Conversations with USH in ChicagoOn April 16th, 2026, the Usher Syndrome Society hosted Cocktails and Conversations with USH in Chicago at the Blue Door Farm Stand. This sold out event featured an authentic, humorous, and...



