Past Events • November 19, 2019
Sight, Sound, Strength: Harpoon Brewery
On November 19, 2019 the Usher Syndrome Society hosted our annual experiential fundraiser event at Harpoon Brewery in Boston, MA to bring awareness and funding to support Usher syndrome.
The event included an array of experiential stations that asked participants to connect to their senses. These stations ranged from a blind beer tasting and blind taco bar to a silent disco featuring music with simulated hearing loss.
The event also featured an educational component and Rebecca Alexander took the floor to share with attendees her experience of losing her vision and hearing due to Usher syndrome and how she has found strength in her journey.
Click here to learn more about our Sight, Sound, & Strength Events
More Events
Times Square Takeover for Usher Syndrome Awareness Day
Upcoming events • September 20, 2025Times Square Takeover for Usher Syndrome Awareness Day 2025On September 20th, 2025 at 11AM, The Usher Syndrome Society will be taking over multiple Times Square billboards in the heart of NYC for a second time! This year's...
See Us, Hear Us: An Immersive Gallery Fundraiser
Upcoming Events • October 23, 2025See Us, Hear Us: An Immersive Exhibition for Usher syndrome On Thursday, October 23rd, 2025, join the Usher Syndrome Society at ARTECHOUSE NYC for See Us, Hear Us: An immersive digital experience that brings a decade of storytelling...
Conversations with USH: Brenden Sorensen
Past events • January 10, 2024Conversations with USH: Brenden Sorensen On January 10, 2024, the Usher Syndrome Society hosted our second Conversations with USH event. This special evening featured Brenden Sorensen, a talented composer and pianist living with...