USH X TOPGOLF 2024

On December 3rd, 2024, The Usher Syndrome Society hosted our annual Sight, Sound, & Strength Fundraiser at Topgolf Boston-Canton. This year marked our largest fundraising event so far and we could not be more grateful for the overwhelming support of our sponsors (scroll down to check out our amazing list of our sponsors!) and all of the attendees who joined us for this special evening. 

We were honored to have professional golfer and multi-sport athlete, Kevin Frost (and his guide dog, Woody) as a guest speaker, sharing how his diagnosis of Usher syndrome has impacted his life and athletic journey.

This event raised over $200,000, all of which is designated for the Usher Syndrome Society’s groundbreaking new Pipeline for Usher Syndrome (PUSH), an initiative in which a team led by six world-class scientists are collaborating to accelerate the development of specific therapies to tackle multiple forms of USH and the continuation of the Usher Syndrome Society Translational Research Grant Program.