Past events • September 20, 2025
Times Square Takeover for Usher Syndrome Awareness Day 2025
On September 20th, 2025 at 11AM, The Usher Syndrome Society took over multiple Times Square billboards in the heart of NYC for a second time!
This year’s takeover took place in honor Usher Syndrome Awareness Day, an internationally recognized day to bring awareness to the rare disease, Usher syndrome, which causes progressive vision and hearing loss.
Footage from the Usher Syndrome Society’s Every Second Counts Times Square Takeover September 20th, 2025
The billboards featured footage from our two powerful awareness commercials that make up our Every Second Counts campaign The first commercial features Rebecca Alexander, award-winning author, psychotherapist, keynote speaker, disability rights advocate, and extreme athlete. The second commercial features the Mullarkey family, in particular, Michael Mullarkey, the youngest of five children, who was unexpectedly diagnosed with Usher syndrome at 1 year old. Together, these commercials begin to depict the wide spectrum of experiences that define Usher syndrome. Watch the full commercials below:
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USH X Swim Alcatraz 2026
Upcoming Events • October 17, 2026USH X Swim Alcatraz 2026This October, the Usher Syndrome Society will host a swim from Alcatraz to shore in honor of a crossing that Rebecca Alexander completed more than a decade ago. The event will include 20 swimmers in total: 10...
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