Past Events • Summer 2018
Strike out USH
In partnership with the Usher Syndrome Society, Rebecca Alexander was selected to throw the ceremonial first pitch at major league baseball games around the country. This campaign lasted throughout the summer of 2018, with Rebecca and the Usher Syndrome Society throwing the first pitch for the Red Sox, Yankees, Chicago Cubs, and Tampa Bay Rays, each at their respective home fields.
With the goal of raising awareness and research funds for Usher Syndrome, the #StrikeOutUSH campaign included a creative and captivating PSA that featured portraits from the Shine a Light on Usher Syndrome Exhibit, which played at the start of each game.
More Events
2026 Shine a Light Portrait Sign ups
2026 connections conference portrait sign upJoin the Shine a Light on Usher syndrome Portrait ExhibitThe Shine a Light on Usher Syndrome Exhibit is the largest collection of photographs and stories from people around the world living with Usher syndrome, designed to...
USH X Swim Alcatraz 2026
Upcoming Events • October 17, 2026USH X Swim Alcatraz 2026This October, the Usher Syndrome Society will host a swim from Alcatraz to shore in honor of a crossing that Rebecca Alexander completed more than a decade ago. The event will include 20 swimmers in total: 10...
Cocktails and Conversations with USH in Chicago
Past Events • April 16, 2026Cocktails and Conversations with USH in ChicagoOn April 16th, 2026, the Usher Syndrome Society hosted Cocktails and Conversations with USH in Chicago at the Blue Door Farm Stand. This sold out event featured an authentic, humorous, and...