Past events • September 20, 2025
Times Square Takeover for Usher Syndrome Awareness Day 2025
On September 20th, 2025 at 11AM, The Usher Syndrome Society took over multiple Times Square billboards in the heart of NYC for a second time!
This year’s takeover took place in honor Usher Syndrome Awareness Day, an internationally recognized day to bring awareness to the rare disease, Usher syndrome, which causes progressive vision and hearing loss.
Footage from the Usher Syndrome Society’s Every Second Counts Times Square Takeover September 20th, 2025
The billboards featured footage from our two powerful awareness commercials that make up our Every Second Counts campaign The first commercial features Rebecca Alexander, award-winning author, psychotherapist, keynote speaker, disability rights advocate, and extreme athlete. The second commercial features the Mullarkey family, in particular, Michael Mullarkey, the youngest of five children, who was unexpectedly diagnosed with Usher syndrome at 1 year old. Together, these commercials begin to depict the wide spectrum of experiences that define Usher syndrome. Watch the full commercials below:
More Events
USH X Swim Alcatraz 2026
Past Events • October 17, 2026USH X Swim Alcatraz 2026On October 17th, The Usher Syndrome Society hosted an awareness event and fundraiser featuring ten swimmers living with Usher syndrome and 12 support swimmers. These 22 individuals made their way across open water...
Cocktails and Conversations with USH in Chicago
Past Events • April 16, 2026Cocktails and Conversations with USH in ChicagoOn April 16th, 2026, the Usher Syndrome Society hosted Cocktails and Conversations with USH in Chicago at the Blue Door Farm Stand. This sold out event featured an authentic, humorous, and...
USH x Urban Wild 2025
Past events • December 2, 2025USH X Urban Wild 2025The Usher Syndrome Society’s annual fundraising event is dedicated to raising vital funds for Usher syndrome (USH) research, while simultaneously educating the public about living with this rare disease. The evening...