Past Events • November 28, 2023
USH X SPIN 2023
Our USH X Spin Boston Ping Pong fundraiser was an enormous success. The incredible support we received from everyone was overwhelming. Thanks to you, we were able to raise over $140,000 which will go directly to our Translational Research Grants for 2024. Together we are changing the future of Usher syndrome.








This event would not have been possible without the generous support of our sponsors. We truly appreciate you and the difference you are helping us make in finding treatments and a cure for Usher syndrome.

Click here to learn more about our Sight, Sound, & Strength Events
More Events
Times Square Takeover for Usher Syndrome Awareness Day
Upcoming events • September 20, 2025Times Square Takeover for Usher Syndrome Awareness Day 2025On September 20th, 2025 at 11AM, The Usher Syndrome Society will be taking over multiple Times Square billboards in the heart of NYC for a second time! This year's...
See Us, Hear Us: An Immersive Gallery Fundraiser
Upcoming Events • October 23, 2025See Us, Hear Us: An Immersive Exhibition for Usher syndrome On Thursday, October 23rd, 2025, join the Usher Syndrome Society at ARTECHOUSE NYC for See Us, Hear Us: An immersive digital experience that brings a decade of storytelling...
Conversations with USH: Brenden Sorensen
Past events • January 10, 2024Conversations with USH: Brenden Sorensen On January 10, 2024, the Usher Syndrome Society hosted our second Conversations with USH event. This special evening featured Brenden Sorensen, a talented composer and pianist living with...