Past Events • December 3, 2024

USH X TOPGOLF 2024

On December 3rd, 2024, The Usher Syndrome Society hosted our annual Sight, Sound, & Strength Fundraiser at Topgolf Boston-Canton. This year marked our largest fundraising event so far and we could not be more grateful for the overwhelming support of our sponsors (scroll down to check out our amazing list of our sponsors!) and all of the attendees who joined us for this special evening. 

 

We were honored to have professional golfer and multi-sport athlete, Kevin Frost (and his guide dog, Woody) as a guest speaker, sharing how his diagnosis of Usher syndrome has impacted his life and athletic journey.

 

This event raised over $200,000, all of which is designated for the Usher Syndrome Society’s groundbreaking new Pipeline for Usher Syndrome (PUSH), an initiative in which a team led by six world-class scientists are collaborating to accelerate the development of specific therapies to tackle multiple forms of USH and the continuation of the Usher Syndrome Society Translational Research Grant Program.

 

USH X Topgolf 2024 Logo

We were so excited to share everything we have accomplished in 2024 with you at this event! We shared the video below which features a few of our major accomplishments and provides more details on our new PUSH research initiative. 

event photos

A Huge Thank you to our Generous Sponsors!

MASTER SPONSORS

Berkshire Bank logo
Corderman & Company Logo
James W. Flett Logo

EAGLE SPONSORS

Watson Brothers logo
Prestige Fire Protection Group logo
Logo for Stride Consumer Partners
JC Floors logo
Davis Architectural Woodworking logo

BIRDIE SPONSORS

Arch Street Glass Logo
E.H.Marchant Logo
McAdam Painting Logo
Pappas Co Logo
Skanska logo
logo for Holt-Geleoc lab

PAR SPONSORS

M.L.McDonald Sales Company
Brian T Malone Company Logo
SOS Corp Logo
Atlantic Power and Light logo
Logo for Translational Hearing Genomics Lab
Logo for Contract Flooring Inc

FAIRWAY SPONSORS

Larking Painting Company Logo
Sullivan Group Logo
ACG MA Logo
Logo for Allegheny Contract Flooring
Logo for Northeastern Mechanical

More Events

2026 Shine a Light Portrait Sign ups

2026 Shine a Light Portrait Sign ups

2026 connections conference portrait sign upJoin the Shine a Light on Usher syndrome Portrait ExhibitThe Shine a Light on Usher Syndrome Exhibit is the largest collection of photographs and stories from people around the world living with Usher syndrome, designed to...

USH X Swim Alcatraz 2026

USH X Swim Alcatraz 2026

Upcoming Events • October 17, 2026USH X Swim Alcatraz 2026This October, the Usher Syndrome Society will host a swim from Alcatraz to shore in honor of a crossing that Rebecca Alexander completed more than a decade ago. The event will include 20 swimmers in total: 10...

Cocktails and Conversations with USH in Chicago

Cocktails and Conversations with USH in Chicago

Past Events • April 16, 2026Cocktails and Conversations with USH in ChicagoOn April 16th, 2026, the Usher Syndrome Society hosted Cocktails and Conversations with USH in Chicago at the Blue Door Farm Stand. This sold out event featured an authentic, humorous, and...