Upcoming events • December 2, 2025
USH X Urban Wild 2025
The Usher Syndrome Society’s annual fundraising event is dedicated to raising vital funds for Usher syndrome (USH) research, while simultaneously educating the public about living with this rare disease. The evening includes interactive experiences where attendees can harness their inner strength and understand some of the challenges faced by someone living with Usher syndrome while also learning more about USH, the Usher Syndrome Society, and the research their contributions are helping to fund.
100% of the proceeds benefit Usher syndrome research!
This year, the Usher Syndrome Society’s Sight, Sound, & Strength fundraiser will be held at Urban Wild in Boston on Tuesday, December 2nd, 2025 from 6PM-8:30PM.
Urban Wild is a restaurant, beer garden, bowling alley, live music venue, and outdoor game space, all-in-one!
This year’s program will feature a special musical guest, a touring folk singer-songwriter living with Retinitis Pigmentosa, who will perform several of his songs and then join Rebecca Alexander, an USH Society ambassador and board member, for a conversation about his experience as a musician living with vision loss. Guests will also be invited to try an experiential deafblind bowling activity, a blind Beer tasting in the beer garden, and access to our Shine A Light portrait exhibit.
More Events
This is USH: An Evening of Conversation
Past Events • December 12, 2022This is USH: An Evening of ConversationOn December 12th, 2022, The Usher Syndrome Society hosted the first This is USH event, where we heard from Steven McCoy and Rebecca Alexander about the unique experience of living with Usher...
Sight, Sound, Strength PKL
Past Events • November 30, 2022Sight, Sound, Strength PKLOn November 30, 2022 the Usher Syndrome Society hosted our annual experiential Sight, Sound, and Strength fundraiser at PKL in Boston. PKL is one of Boston's hottest new venues, with 4 premium indoor...
Sight, Sound, Strength: Harpoon Brewery
Past Events • November 19, 2019Sight, Sound, Strength: Harpoon BreweryOn November 19, 2019 the Usher Syndrome Society hosted our annual experiential fundraiser event at Harpoon Brewery in Boston, MA to bring awareness and funding to support Usher syndrome. The...