February 28, 2026
Rare Disease Day 2026
In 2025, we featured the Mullarkey Family in our second National Every Second Counts commercial. In the making of that commercial, Rebecca Alexander sat down with Samantha and Alec Mullarkey on behalf of the Usher Syndrome Society to learn more about their young son Michael’s unexpected diagnosis with Usher syndrome. In honor of Rare Disease Day today, we are sharing their story.
More Events
Cocktails and Conversations with USH in Chicago
Upcoming events • April 16, 2026Cocktails and Conversations with USHin ChicagoOn April 16th, 2026, you are invited to join the Usher Syndrome Society at the Blue Door Farm Stand for Cocktails and Conversations with USH in Chicago. Experience a powerful dialogue led by...
USH x Urban Wild 2025
Past events • December 2, 2025USH X Urban Wild 2025The Usher Syndrome Society’s annual fundraising event is dedicated to raising vital funds for Usher syndrome (USH) research, while simultaneously educating the public about living with this rare disease. The evening...
Times Square Takeover for Usher Syndrome Awareness Day
Past events • September 20, 2025Times Square Takeover for Usher Syndrome Awareness Day 2025On September 20th, 2025 at 11AM, The Usher Syndrome Society took over multiple Times Square billboards in the heart of NYC for a second time! This year's takeover took...