Terms & Conditions

Last updated October 7, 2026

AGREEMENT TO OUR LEGAL TERMS

We are Usher Syndrome Society (“Usher Syndrome Society,” “we,” “us,” or “our”), a nonprofit organization registered in Massachusetts, United States, at 1544 Central Ave, Needham, MA 02492.

We operate the website www.ushersyndromesociety.org (the “Site”), as well as any other related products and services that refer or link to these legal terms (the “Legal Terms”) (collectively, the “Services”).

The Usher Syndrome Society website provides information and resources about Usher syndrome, research, awareness initiatives, events, and ways to support our mission. Visitors may also make charitable donations, register for events, and purchase physical goods through our online store to support our mission.

You can contact us by phone at 781-838-0204, email at [email protected], or by mail at 1544 Central Ave, Needham, MA 02492, United States.

These Legal Terms constitute a legally binding agreement made between you, whether personally or on behalf of an entity (“you”), and Usher Syndrome Society concerning your access to and use of the Services. By accessing or using the Services, you agree that you have read, understood, and agreed to be bound by these Legal Terms. If you do not agree with these Legal Terms, you should discontinue use of the Services.

Supplemental terms and conditions or documents that may be posted on the Services from time to time are incorporated into these Legal Terms by reference. We reserve the right, in our sole discretion, to make changes or modifications to these Legal Terms from time to time. We will indicate changes by updating the “Last updated” date of these Legal Terms. Your continued use of the Services following the posting of revised Legal Terms constitutes acceptance of those changes.

We recommend that you retain a copy of these Legal Terms for your records.

1. OUR SERVICES

The information provided through the Services is intended for general informational, educational, awareness, fundraising, and charitable purposes.

The information provided when using the Services is not intended for distribution to or use by any person or entity in any jurisdiction or country where such distribution or use would be contrary to applicable law or regulation. Those who choose to access the Services from other locations do so on their own initiative and are responsible for compliance with applicable local laws.

2. INTELLECTUAL PROPERTY RIGHTS

Our Intellectual Property

We are the owner or licensee of intellectual property rights in our Services, including website designs, text, audio, video, films, photographs, graphics, artwork, campaign materials, and other content available through the Services (collectively, the “Content”), as well as trademarks, service marks, names, and logos contained therein (the “Marks”).

Our Content and Marks may be protected by copyright, trademark, and other intellectual property and unfair competition laws in the United States and other jurisdictions.

The Content and Marks are provided through the Services for your personal, non-commercial use only.

Subject to your compliance with these Legal Terms, including the “PROHIBITED ACTIVITIES” section below, we grant you a non-exclusive, non-transferable, revocable license to access the Services and, where appropriate, download or print portions of the Content solely for your personal, non-commercial use.

This permission does not grant a general right to download, reproduce, republish, distribute, modify, publicly display, or otherwise use photographs, films, videos, interviews, or other visual content appearing on the Services. Such content may not be used without prior written permission from the Usher Syndrome Society or the applicable rights holder.

Except as expressly permitted by these Legal Terms, no part of the Services and no Content or Marks may be copied, reproduced, aggregated, republished, uploaded, posted, publicly displayed, encoded, translated, transmitted, distributed, modified, sold, licensed, or otherwise exploited without our express prior written permission or the permission of the applicable rights holder.

If you wish to make use of the Services, Content, or Marks beyond what is permitted by these Legal Terms, please contact us at [email protected].

If permission is granted to post, reproduce, or publicly display any part of our Services or Content, you must comply with the terms of that permission and appropriately identify the Usher Syndrome Society and/or applicable rights holder.

We reserve all rights not expressly granted to you in and to the Services, Content, and Marks.

Any breach of these Intellectual Property Rights may constitute a material breach of these Legal Terms and may result in termination of your right to use the Services.

3. USER REPRESENTATIONS

By using the Services, you represent and warrant that:

1. You have the legal capacity to agree to and comply with these Legal Terms;
2. You will not access the Services through unauthorized automated or non-human means, whether through a bot, script, or otherwise;
3. You will not use the Services for any illegal or unauthorized purpose; and
4. Your use of the Services will not violate any applicable law or regulation.

If you provide information that is untrue, inaccurate, not current, or incomplete in connection with a transaction or other use of the Services, we reserve the right to refuse or restrict current or future use of the applicable Services.

4. PRODUCTS

We make reasonable efforts to display as accurately as possible the colors, features, specifications, and details of products available through the Services. However, we cannot guarantee that your electronic display will accurately reflect the actual colors or appearance of products.

All products are subject to availability, and we cannot guarantee that items will remain in stock. We reserve the right to discontinue products at any time. Prices are subject to change.

5. PURCHASES AND PAYMENT

We may accept payment methods including Visa, Mastercard, American Express, Discover, and other payment methods made available through our payment processors.

You agree to provide current, complete, and accurate purchase and payment information for purchases made through the Services.

Applicable sales tax and shipping charges may be added to purchases where required. All payments are in U.S. dollars unless otherwise indicated.

You agree to pay all charges at the prices in effect at the time of your purchase, together with applicable shipping charges and taxes. You authorize the applicable payment provider to process these amounts.

We reserve the right to correct errors or mistakes in pricing and to refuse, limit, or cancel an order where reasonably necessary, including orders that appear to have been placed by unauthorized resellers or distributors.

6. RETURN POLICY

All merchandise purchases are subject to our Returns & Refunds Policy:

www.ushersyndromesociety.org/returns-refunds-policy/

All merchandise sales are final. We do not accept returns or exchanges and do not provide refunds for merchandise purchases, except as otherwise required by applicable law.

If you receive an item that is damaged, defective, or incorrect, please contact us at [email protected] so that we can address the issue.

7. CHARITABLE DONATIONS

Donations made through or in connection with the Services support the charitable mission and programs of the Usher Syndrome Society.

Charitable donations are generally nonrefundable. If you believe a donation was made in error, was duplicated, or was made in an incorrect amount, please contact us at [email protected] so that we can review the circumstances.

The tax deductibility of a charitable contribution depends on applicable law and the donor’s individual circumstances. If a donor receives goods or services in connection with a payment, the tax-deductible portion of that payment may be limited. Donors should consult their own tax advisor regarding the deductibility of any contribution.

Merchandise purchases and event registrations are separate from charitable donations and may be subject to their own applicable terms and policies.

8. EVENTS AND REGISTRATIONS

The Usher Syndrome Society may offer registration for events, programs, fundraising activities, or other initiatives through the Services or through third-party registration platforms.

Specific events or activities may have additional terms, including registration fees, cancellation policies, participant requirements, releases, or waivers. When applicable, those terms will be provided separately and will apply in addition to these Legal Terms.

Payments for event registrations, sponsorships, or other event-related transactions may be subject to separate cancellation or refund policies communicated in connection with the applicable event.

9. PROHIBITED ACTIVITIES

You may not access or use the Services for any purpose other than that for which we make the Services available. The Services may not be used in connection with commercial endeavors except those specifically endorsed or approved by us.

As a user of the Services, you agree not to:

1. Systematically retrieve data or other content from the Services to create or compile, directly or indirectly, a collection, compilation, database, or directory without our written permission;
2. Trick, defraud, or mislead us or other users, including attempts to obtain sensitive account information;
3. Circumvent, disable, or otherwise interfere with security-related features of the Services, including features that prevent or restrict use or copying of Content;
4. Use information obtained from the Services to harass, abuse, threaten, or harm another person;
5. Make improper use of our support or contact services or submit false reports of abuse or misconduct;
6. Use the Services in a manner inconsistent with applicable laws or regulations;
7. Engage in unauthorized framing of the Services;
8. Upload or transmit viruses, Trojan horses, malicious code, or other material that interferes with the operation or use of the Services;
9. Engage in unauthorized automated use of the Services, including unauthorized data mining, robots, scraping, or similar data-gathering or extraction tools;
10. Delete copyright or other proprietary-rights notices from Content;
11. Attempt to impersonate another person or entity;
12. Interfere with, disrupt, or create an undue burden on the Services or networks or services connected to the Services;
13. Attempt to bypass measures designed to prevent or restrict access to the Services or any portion of the Services;
14. Except as permitted by applicable law, decipher, decompile, disassemble, or reverse engineer software comprising or forming part of the Services;
15. Collect usernames, email addresses, or other information about users for the purpose of sending unsolicited communications;
16. Use the Services or Content as part of an unauthorized revenue-generating endeavor or commercial enterprise;
17. Use the Services to advertise or offer to sell goods or services without our authorization; or
18. Copy, reproduce, download, distribute, modify, republish, publicly display, or otherwise use photographs, videos, films, interviews, or other visual content from the Services without prior written permission from the Usher Syndrome Society or the applicable rights holder.

10. THIRD-PARTY WEBSITES AND CONTENT

The Services may contain links to third-party websites and resources, including research institutions, clinical trial resources, nonprofit organizations, donation processors, event registration services, payment processors, and other external resources.

Third-party websites and content are not controlled by the Usher Syndrome Society, and we are not responsible for their content, accuracy, availability, security, privacy practices, policies, products, or services.

The inclusion of a link to a third-party website does not necessarily constitute an endorsement, recommendation, partnership, or affiliation by the Usher Syndrome Society.

If you leave the Services and access a third-party website, that website’s terms and policies will apply. We encourage you to review the applicable terms and privacy policies of third-party services you use.

Purchases or transactions made through third-party websites may be governed by the terms and policies of those third parties.

11. SERVICES MANAGEMENT

We reserve the right, but not the obligation, to:

1. Monitor the Services for violations of these Legal Terms;
2. Take appropriate action regarding conduct that we reasonably believe violates applicable law or these Legal Terms;
3. Refuse or restrict access to the Services where appropriate;
4. Remove or disable content that interferes with the proper operation of the Services; and
5. Otherwise manage the Services in a manner designed to protect our rights, property, users, and the proper functioning of the Services.

12. PRIVACY POLICY

We care about data privacy and security. Please review our Privacy Policy:

www.ushersyndromesociety.org/privacy/

Our Privacy Policy explains how we collect, use, disclose, and protect personal information in connection with the Services.

The Services are operated from the United States. If you access the Services from outside the United States, information you provide may be transferred to and processed in the United States, subject to applicable law and as described in our Privacy Policy.

13. MEDICAL AND HEALTH INFORMATION DISCLAIMER

The Usher Syndrome Society does not provide medical advice, diagnosis, or treatment.

Information provided through the Services regarding Usher syndrome, genetics, hearing loss, vision loss, research, clinical trials, treatments, therapies, or other health-related topics is provided for general informational and educational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment.

Always seek the advice of a qualified healthcare professional regarding medical questions, diagnoses, treatments, or participation in clinical research. Do not disregard professional medical advice or delay seeking it because of information provided through the Services.

Research, clinical trials, treatments, and other scientific and medical information may change over time. While we make reasonable efforts to provide accurate and current information, we do not guarantee that all information is complete, accurate, or current.

The inclusion of information about a particular study, clinical trial, researcher, institution, treatment, therapy, product, or company does not constitute medical advice or, unless expressly stated otherwise, an endorsement or recommendation by the Usher Syndrome Society.

14. TERM AND TERMINATION

These Legal Terms remain in effect while you use the Services.

Without limiting other provisions of these Legal Terms, we reserve the right, to the extent permitted by applicable law, to restrict or deny access to the Services to any person who violates these Legal Terms or applicable law or whose conduct threatens the security or proper operation of the Services.

We also reserve the right to pursue appropriate legal remedies where necessary to protect the Usher Syndrome Society, its Services, its Content, or others.

15. MODIFICATIONS AND INTERRUPTIONS

We reserve the right to change, modify, suspend, or remove portions of the Services at any time or for any reason. We have no obligation to update information on the Services except as otherwise required by applicable law.

We cannot guarantee that the Services will be available at all times. Hardware, software, maintenance, technical problems, or other circumstances may result in interruptions, delays, or errors.

To the fullest extent permitted by applicable law, we will not be liable for loss, damage, or inconvenience resulting solely from an inability to access or use the Services during downtime, interruption, or discontinuance.

16. GOVERNING LAW

These Legal Terms and your use of the Services are governed by and construed in accordance with the laws of the Commonwealth of Massachusetts, without regard to its conflict-of-law principles.

17. DISPUTE RESOLUTION

Any legal action arising from or relating to these Legal Terms or the Services shall be commenced or prosecuted in the state or federal courts having appropriate jurisdiction in Norfolk County, Massachusetts.

To the extent permitted by applicable law, the parties consent to the jurisdiction and venue of such courts.

The United Nations Convention on Contracts for the International Sale of Goods and the Uniform Computer Information Transactions Act (UCITA) do not apply to these Legal Terms.

18. CORRECTIONS

The Services may contain typographical errors, inaccuracies, or omissions, including information relating to descriptions, pricing, availability, research, events, and other information.

We reserve the right to correct errors, inaccuracies, or omissions and to change or update information on the Services at any time without prior notice.

19. DISCLAIMER

THE SERVICES ARE PROVIDED ON AN “AS-IS” AND “AS-AVAILABLE” BASIS.

TO THE FULLEST EXTENT PERMITTED BY APPLICABLE LAW, WE DISCLAIM WARRANTIES, EXPRESS OR IMPLIED, IN CONNECTION WITH THE SERVICES AND YOUR USE OF THEM, INCLUDING IMPLIED WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, AND NON-INFRINGEMENT.

WHILE WE MAKE REASONABLE EFFORTS TO PROVIDE ACCURATE INFORMATION, WE DO NOT WARRANT OR REPRESENT THAT ALL CONTENT AVAILABLE THROUGH THE SERVICES IS ACCURATE, COMPLETE, CURRENT, OR ERROR-FREE.

TO THE FULLEST EXTENT PERMITTED BY APPLICABLE LAW, WE WILL NOT BE RESPONSIBLE FOR ERRORS, MISTAKES, OR INACCURACIES IN CONTENT; UNAUTHORIZED ACCESS TO OR USE OF OUR SYSTEMS; INTERRUPTIONS IN TRANSMISSION TO OR FROM THE SERVICES; OR VIRUSES, MALICIOUS CODE, OR OTHER HARMFUL MATERIAL THAT MAY BE TRANSMITTED THROUGH THE SERVICES BY A THIRD PARTY.

WE DO NOT WARRANT, ENDORSE, GUARANTEE, OR ASSUME RESPONSIBILITY FOR PRODUCTS OR SERVICES OFFERED BY THIRD PARTIES THROUGH THIRD-PARTY WEBSITES LINKED FROM THE SERVICES.

NOTHING IN THESE LEGAL TERMS IS INTENDED TO EXCLUDE OR LIMIT ANY WARRANTY, RIGHT, OR LIABILITY THAT CANNOT LAWFULLY BE EXCLUDED OR LIMITED.

20. LIMITATIONS OF LIABILITY

TO THE FULLEST EXTENT PERMITTED BY APPLICABLE LAW, THE USHER SYNDROME SOCIETY AND ITS DIRECTORS, OFFICERS, EMPLOYEES, VOLUNTEERS, REPRESENTATIVES, AND AGENTS WILL NOT BE LIABLE FOR INDIRECT, CONSEQUENTIAL, EXEMPLARY, INCIDENTAL, SPECIAL, OR PUNITIVE DAMAGES, INCLUDING LOST PROFITS, LOST REVENUE, OR LOSS OF DATA, ARISING FROM OR RELATED TO YOUR USE OF THE SERVICES, EVEN IF WE HAVE BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGES.

NOTHING IN THESE LEGAL TERMS IS INTENDED TO EXCLUDE OR LIMIT LIABILITY WHERE SUCH LIABILITY CANNOT LAWFULLY BE EXCLUDED OR LIMITED.

21. INDEMNIFICATION

To the extent permitted by applicable law, you agree to defend, indemnify, and hold harmless the Usher Syndrome Society and its officers, directors, employees, representatives, and agents from and against losses, liabilities, claims, demands, and reasonable attorneys’ fees and expenses arising from:

1. Your misuse of the Services;
2. Your material breach of these Legal Terms;
3. Your violation of applicable law;
4. Your violation of the rights of a third party, including intellectual property rights; or
5. Your intentional harmful conduct in connection with the Services.

We reserve the right to assume the defense and control of any matter subject to indemnification, and you agree to reasonably cooperate with the defense of such claims.

22. USER DATA

We may maintain certain data that you transmit through the Services, as well as data relating to your use of the Services, in accordance with our Privacy Policy.

Although we take reasonable measures to protect information and maintain our Services, no method of electronic transmission or storage is completely secure.

The collection, use, retention, and protection of personal information are further described in our Privacy Policy.

23. ELECTRONIC COMMUNICATIONS, TRANSACTIONS, AND SIGNATURES

Visiting the Services, sending us emails, completing online forms, making donations, registering for events, and completing purchases may constitute electronic communications or transactions.

You consent to receive transaction-related communications electronically where permitted by applicable law, and you agree that agreements, notices, disclosures, and other communications we provide electronically may satisfy legal requirements that such communications be in writing.

Electronic signatures, contracts, orders, and records may be used in connection with transactions conducted through the Services to the extent permitted by applicable law.

24. CALIFORNIA USERS AND RESIDENTS

If a complaint with us is not satisfactorily resolved, California residents may contact the Complaint Assistance Unit of the Division of Consumer Services of the California Department of Consumer Affairs in writing at 1625 North Market Blvd., Suite N 112, Sacramento, California 95834, or by telephone at (800) 952-5210 or (916) 445-1254.

25. MISCELLANEOUS

These Legal Terms and any policies or operating rules posted by us through the Services constitute the agreement and understanding between you and us regarding your use of the Services.

Our failure to exercise or enforce a right or provision of these Legal Terms does not constitute a waiver of that right or provision.

These Legal Terms operate to the fullest extent permitted by applicable law.

We may assign our rights and obligations under these Legal Terms where permitted by applicable law.

We will not be responsible for loss, damage, delay, or failure to act caused by circumstances beyond our reasonable control.

If any provision or portion of these Legal Terms is determined to be unlawful, void, or unenforceable, that provision or portion will be treated as severable and will not affect the validity or enforceability of the remaining provisions.

Nothing in these Legal Terms creates a joint venture, partnership, employment, or agency relationship between you and the Usher Syndrome Society.

26. CONTACT US

If you have questions about these Legal Terms, a complaint regarding the Services, or would like further information regarding use of the Services, please contact us at:

Usher Syndrome Society
1544 Central Ave
Needham, MA 02492
United States

Phone: 781-838-0204
Email: [email protected]
Website: www.ushersyndromesociety.org