Upcoming events • December 2, 2025
USH X Urban Wild 2025
The Usher Syndrome Society’s annual fundraising event is dedicated to raising vital funds for Usher syndrome (USH) research, while simultaneously educating the public about living with this rare disease. The evening includes interactive experiences where attendees can harness their inner strength and understand some of the challenges faced by someone living with Usher syndrome while also learning more about USH, the Usher Syndrome Society, and the research their contributions are helping to fund.
100% of the proceeds benefit Usher syndrome research!
This year, the Usher Syndrome Society’s Sight, Sound, & Strength fundraiser will be held at Urban Wild in Boston on Tuesday, December 2nd, 2025 from 6PM-8:30PM.
Urban Wild is a restaurant, beer garden, bowling alley, live music venue, and outdoor game space, all-in-one!
This year’s program will feature a special musical guest, a touring folk singer-songwriter living with Retinitis Pigmentosa, who will perform several of his songs and then join Rebecca Alexander, an USH Society ambassador and board member, for a conversation about his experience as a musician living with vision loss. Guests will also be invited to try an experiential deafblind bowling activity, a blind Beer tasting in the beer garden, and access to our Shine A Light portrait exhibit.
More Events
Times Square Takeover for Usher Syndrome Awareness Day
Upcoming events • September 20, 2025Times Square Takeover for Usher Syndrome Awareness Day 2025On September 20th, 2025 at 11AM, The Usher Syndrome Society will be taking over multiple Times Square billboards in the heart of NYC for a second time! This year's...
See Us, Hear Us: An Immersive Gallery Fundraiser
Upcoming Events • October 23, 2025See Us, Hear Us: An Immersive Exhibition for Usher syndrome On Thursday, October 23rd, 2025, join the Usher Syndrome Society at ARTECHOUSE NYC for See Us, Hear Us: An immersive digital experience that brings a decade of storytelling...
Conversations with USH: Brenden Sorensen
Past events • January 10, 2024Conversations with USH: Brenden Sorensen On January 10, 2024, the Usher Syndrome Society hosted our second Conversations with USH event. This special evening featured Brenden Sorensen, a talented composer and pianist living with...