Upcoming Events • October 17, 2026

USH X Swim Alcatraz 2026

This October, the Usher Syndrome Society will host a swim from Alcatraz to shore in honor of a crossing that Rebecca Alexander completed more than a decade ago. The event will include 20 swimmers in total: 10 individuals living with Usher syndrome and 10 support swimmers.

About

On October 17, 2026, the Usher Syndrome Society will host a swim from Alcatraz to shore with 20 swimmers in total: 10 individuals living with Usher syndrome and 10 support swimmers.


This swim is in honor of Rebecca Alexander, an award-winning author, psychotherapist, disability rights advocate, extreme athlete, and board member of the Usher Syndrome Society, who is living with Usher syndrome. Rebecca first completed this crossing over a decade ago and now, as she faces further vision loss and no functional hearing without the use of implants, she will return to the water for this monumental event.


This moment will be captured by our documentary film team, who has been working with the Usher Syndrome Society for the last 6 years to create a powerful feature film spotlighting Rebecca Alexander and the work of the Usher Syndrome Society.


Usher syndrome causes progressive hearing and vision loss, and the Alcatraz crossing is symbolic of the challenges of living with this disease. During the swim, most hearing devices must be removed while swimmers navigate dark, unpredictable open water. This experience offers a rare glimpse into the uncertainty and progressive sensory loss individuals with Usher syndrome face every day.

 

This event aims to bring awareness and raise critical research funds for Usher syndrome, which currently has no treatments or cure.

Rebecca and her friend Caroline are standing next to each other on a boat wearing wetsuits

We invite all spectators to join us on October 17, 2026 by 8:00 AM at the Aquatic Park Bleachers to cheer on our 20 swimmers when they jump off the boat at Alcatraz and swim to shore! You can find an RSVP form below to let us know you will be coming!

 

Tentative Saurday Morning Schedule for swimmers

• 6:15am Check in at Aquatic Park Bleachers (700-898 Beach Street, SF, CA 94105)
• 6:35am Swim Director Briefing
• 6:45am Good luck and send off to swimmers
• 7:00am Walk to boats
• 7:15am Board boats
• 8:00am Swimmers jump in water to begin swim
 

More details coming soon for the after swim event and more.

MEET OUR SWIMMERS

HOW YOU CAN PARTICIPATE

JOIN OUR VIRTUAL SWIM FUNDRAISER!

June 15th through September 30th

In addition to the Alcatraz swim, supporters from anywhere in the world are invited to participate in a virtual swim fundraiser. Participants can create their own personal fundraising page and complete a 1.25 mile swim at their own pace, in their own location, anytime between June 15-September 30, 2026. Whether swimming in a pool, lake, ocean, or other open water, every participant will help raise critical awareness and funds for Usher syndrome research while standing in solidarity with the Usher syndrome community.

Create your own fundraising page here today to support the Alcatraz swimmers or participate in your own virtual swim challenge. Every fundraiser and every mile swum helps bring us closer to treatments for Usher syndrome.

Support the swimmers and usher syndrome research

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