Upcoming events • December 2, 2025
USH X Urban Wild 2025
The Usher Syndrome Society’s annual fundraising event is dedicated to raising vital funds for Usher syndrome (USH) research, while simultaneously educating the public about living with this rare disease. The evening includes interactive experiences where attendees can harness their inner strength and understand some of the challenges faced by someone living with Usher syndrome while also learning more about USH, the Usher Syndrome Society, and the research their contributions are helping to fund.
100% of the proceeds benefit Usher syndrome research!
This year, the Usher Syndrome Society’s Sight, Sound, & Strength fundraiser will be held at Urban Wild in Boston on Tuesday, December 2nd, 2025 from 6PM-8:30PM.
Urban Wild is a restaurant, beer garden, bowling alley, live music venue, and outdoor game space, all-in-one!
This year’s program will feature a special musical guest, a touring folk singer-songwriter living with Retinitis Pigmentosa, who will perform several of his songs and then join Rebecca Alexander, an USH Society ambassador and board member, for a conversation about his experience as a musician living with vision loss. Guests will also be invited to try an experiential deafblind bowling activity, a blind Beer tasting in the beer garden, and access to our Shine A Light portrait exhibit.
More Events
Lobbying for USH
Lobby-ing for USH CampaignAn Awareness Initiative for Usher Syndrome in Lobbies Around BostonLobby-ing for USH is an opportunity to showcase our powerful Shine A Light on Usher Syndrome Photojournalism Exhibit in prominent building lobbies around the city of Boston...
USH X SPIN 2023
Past Events • November 28, 2023USH X SPIN 2023Our USH X Spin Boston Ping Pong fundraiser was an enormous success. The incredible support we received from everyone was overwhelming. Thanks to you, we were able to raise over $140,000 which will go directly to our...
Orangetheory Fitness X USH
Past Events • June 3, 2023Orangetheory Fitness X USHOn June 3, 2023, Orangetheory Fitness studios around the country came together to educate the public and raise research funds for the rare disease Usher syndrome, the leading genetic cause of combined deafness and...