February 28, 2026
Rare Disease Day 2026
In 2025, we featured the Mullarkey Family in our second National Every Second Counts commercial. In the making of that commercial, Rebecca Alexander sat down with Samantha and Alec Mullarkey on behalf of the Usher Syndrome Society to learn more about their young son Michael’s unexpected diagnosis with Usher syndrome. In honor of Rare Disease Day today, we are sharing their story.
More Events
Sight, Sound, Strength PKL
Past Events • November 30, 2022Sight, Sound, Strength PKLOn November 30, 2022 the Usher Syndrome Society hosted our annual experiential Sight, Sound, and Strength fundraiser at PKL in Boston. PKL is one of Boston's hottest new venues, with 4 premium indoor...
Sight, Sound, Strength: Harpoon Brewery
Past Events • November 19, 2019Sight, Sound, Strength: Harpoon BreweryOn November 19, 2019 the Usher Syndrome Society hosted our annual experiential fundraiser event at Harpoon Brewery in Boston, MA to bring awareness and funding to support Usher syndrome. The...
Strike Out USH
Past Events • Summer 2018Strike out USHIn partnership with the Usher Syndrome Society, Rebecca Alexander was selected to throw the ceremonial first pitch at major league baseball games around the country. This campaign lasted throughout the summer of 2018, with...