Who We Are

Board & Staff

Sophia Boccard

Sophia Boccard

Sophia Boccard is a digital marketing strategist with over a decade of marketing experience in the entertainment industry. 

"After being diagnosed with Usher syndrome type 2A in 2012, I realized that a cure for both hearing and vision was something I needed to fight for,” Sophia says. As a board member, Sophia shares her experience living with Usher syndrome to raise awareness and find better therapies and cures.