Personal Fundraisers
With us, it’s personal. Help us touch more lives affected by USH
Do you or someone you know have Usher syndrome and want to help raise money for Usher syndrome research? We can set up a dedicated fundraising page for you on our website to collect donations that will go directly to Usher syndrome research. Check out our current fundraisers below or contact us to set up a personal fundraising page.
All Personal Fundraisers
Interested in making a personal fundraiser page?
Personal fundraisers are a customized fundraising tool on the Usher Syndrome Society website that spotlight an individual, family, or group raising money for Usher syndrome. The page is usually a mix of personal writing paired with accompanying photos that share the experiences, hopes, challenges, and fundraising efforts of individuals and families living with Usher syndrome.
How do donations work through Personal Fundraiser pages?
Every personal fundraiser page has a donation portal, which allows the Usher Syndrome Society to track all of the donations that come through this page. This set up also offers flexibility to designate donations to go towards research for a particular type of Usher syndrome.
What do I need to do to set up a personal fundraiser page?
Anybody can have a personal fundraiser set up in their honor or in honor of someone else. The Usher Syndrome Society will design and manage the page.
To get started, send the following materials to [email protected]
• A written story about the person the fundraiser is for. This helps connect readers to the cause. There’s no required length, but we recommend a few thoughtful paragraphs to provide context while keeping it easy to read.
• 4 to 10 high resolution photos to bring the story to life. These images will accompany the narrative and include a page header. Feel free to include a mix of portrait and landscape formats.
• Optional video: You may include a high resolution video if you’d like, as long as you own the rights or have permission to share it.
• Donation details: If you’d like funds directed toward a specific Usher syndrome subtype or initiative, please let us know. We will ensure your donation portal is set up accordingly.
How can I keep track of the donations made through my personal fundraiser page?
The Usher Syndrome Society can send you a scheduled automated report of all donations received through your personal fundraising page.
If you have any questions or requests for the page, please email [email protected]